Danish Family Races to Raise $2.4M for Daughter’s Zolgensma Therapy & Staying True To Yourself
SMA News Today’s multimedia associate, Price Wooldridge, discusses a Danish family raising $2.4 million for their daughter’s Zolgensma therapy. Also, Kevin Schaefer reads a column about staying true ...
5 Touko 202112min
#81: Interview With Chaz Hayden - Writer and YouTuber with SMA
In episode 81, host Kevin Schaefer talks with Chaz Hayden from Princeton, New Jersey. Chaz is a writer and YouTuber with SMA. He talks about growing up with SMA, starting college at a young age, and h...
4 Touko 202138min
#AANAM – Zolgensma May Lead to Faster, Greater Gains Than Spinraza
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma may lead to faster, greater gains than Spinraza in Spinal Muscular Atrophy (SMA) infants. Also, DeAnn Runge reads an a...
3 Touko 202111min
Neurofilaments Before Spinraza May Predict Motor Improvements & Reviewing The Sound of Metal
SMA News Today’s multimedia associate, Price Wooldridge, discusses neurofilaments, before beginning Spinraza, may predict motor improvements in children with Spinal Muscular Atrophy (SMA). Also, DeAn...
30 Huhti 20219min
Health Canada Approves Evrysdi for At-home Treatment
SMA News Today’s multimedia associate, Price Wooldridge, discusses Health Canada’s approval of Evrysdi for at-home treatment in SMA patients. Also, Forums Director Kevin Schaefer reads a column by Ar...
28 Huhti 20218min
Immune Response to Zolgensma Can Be Common in Older SMA Children
SMA News Today’s multimedia associate, Price Wooldridge, discusses the immune reponse to Zolgensma can be common in older Spinal Muscular Atrophy (SMA) children. Also, SMA News Today content creator ...
26 Huhti 20219min
Prenatal Enrollment Yields Faster Results from Newborn Screening
SMA News Today’s multimedia associate, Price Wooldridge, discusses prenatal enrollment of newborns for Spinal Muscular Atrophy (SMA) leads to faster results and speedier treatments. Also, DeAnn Runge...
23 Huhti 20219min
Apitegromab Improving or Stabilizing Motor Function in Children And Young Adults With Small
SMA News Today’s multimedia associate, Price Wooldridge, discusses Apitegromab improving or stabilizing motor function in children and young adults with Spinal Muscular Atrophy (SMA). Forums Director...
21 Huhti 202110min
