#11 - Interview With Filmmaker Owen Kent

#11 - Interview With Filmmaker Owen Kent

SMA News Today Community Editor Kevin Schaefer interviews Owen Kent, a filmmaker who has SMA. Kevin and Owen met at the 2018 CureSMA Conference in Dallas about his SMA diagnosis and experience with the disease, as well as his next, upcoming film project.

Jaksot(443)

#22 SPECIAL EDITION - Zolgensma (AVXS - 101) Under Priority FDA Review

#22 SPECIAL EDITION - Zolgensma (AVXS - 101) Under Priority FDA Review

SMA News Today Forums & Multimedia Director Michael Morale discusses the breaking news Zolgensma (AVXS-101) Under Priority FDA Review as Possible Gene Therapy for SMA Type 1. Read the full report he...

4 Joulu 20186min

#21 - Roundtable Discussion Of AVXS - 101

#21 - Roundtable Discussion Of AVXS - 101

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale discuss AveXis' filing for FDA approval of experimental small therapy AVXS-101.

26 Marras 201827min

#20 Interview With Randy Clark

#20 Interview With Randy Clark

In SMA News Today's 20th podcast episode, Community Editor Kevin Schaefer interviews veteran caregiver Randy Clark, who has worked with Kevin for four years.

16 Marras 201828min

#19 - Interview With Michael Morale

#19 - Interview With Michael Morale

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale interview one another in a new format that will feature more roundtable-style discussions about SMA. This podcast take...

7 Marras 20181h 6min

#17 - Interview With Shane Burcaw

#17 - Interview With Shane Burcaw

In SMA News Today's 17th podcast, Community Editor Kevin Schaefer interviews Shane Burcaw, author and Founder and President of the nonprofit "Laughing At My Nightmare."

23 Loka 201836min

#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

#18 SPECIAL EDITION - AveXis Announcement For FDA Approval Of AVXS101

In this special edition of the SMA News today podcast, Forums Editor Michael Morale discusses AveXis' recent announcement that experimental SMA gene therapy AVXS-101 has been submitted to the US Food ...

22 Loka 20185min

#16 - Interview With Brian Ronningen

#16 - Interview With Brian Ronningen

In SMA News Today's 16th edition of Community Editor Kevin Schaefer's podcast, Kevin interviews Brian Ronningen -- a 48 year-old Human Resources professional who has SMA type 2 -- about his experience...

11 Loka 201829min

#15 - Byron And Moriah Potter

#15 - Byron And Moriah Potter

In the 15th episode of the SMA News Today podcast, Community Editor Kevin Schaefer interviews Byron and Moriah Potter -- parents of two children who have SMA.

17 Syys 201839min

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