Activities Underway for Newborn Screening Awareness Month
SMA News Today’s multimedia associate, Price Wooldridge, discusses the activities currently underway for Newborn Screening Awareness Month. Are you interested in learning more about spinal muscular a...
18 Syys 20205min
Experiences With a BiPAP Machine And The Pros And Cons of Wearing One & Wardrobe Challenges
Forums Director Kevin Schaefer talks about his experiences with a BiPAP machine, and the pros and cons of wearing one. DeAnn shares Halsey’s latest column that talks about wardrobe challenges. To le...
16 Syys 20207min
#66: Talking About Evrysdi, SRK-015, and Recent Columns
In episode 66, hosts Kevin Schaefer and Michael Morale discuss news regarding the FDA-approved treatment Evrysdi, and Michael’s decision to switch to this therapy. They also talk about the clinical tr...
15 Syys 202041min
#65 - Interview With Dwight Reed
In episode 65, host Kevin Schaefer talks with Dwight Reed from Virginia. Dwight is a father of three, and his youngest daughter has SMA Type 1. Dwight discusses his family life, engaging with the SMA ...
1 Syys 202028min
#64 - Roundtable Podcast Discussion on Technology
In this episode, members of the SMA News Today team discuss assistive technologies that have had a unique impact on their lives. These technologies include electric wheelchairs, Amazon Echo devices, t...
24 Elo 202045min
#62 - Interview With Shawn Stewart
In episode 62, host Kevin Schaefer talks with Shawn Stewart from southern California. Shawn has his own tax service business, and he has SMA Type 3. He discusses growing up with a disability, adult li...
21 Heinä 202040min
#61 - Recapping the 2020 Cure SMA Virtual Conference
In episode 61, the SMA News Today team shares some highlights from the 2020 virtual Cure SMA conference. They discuss webinar presentations, research updates, and virtual social events which they part...
7 Heinä 202032min
The First Virtual Cure SMA Conference, Creating a Sanctuary, Scoliosis & Epic Wheelchair Stories
Forums Director Kevin Schaefer talks about taking part in the first virtual Cure SMA conference. This week’s forum topics include DeAnn’s latest vlog regarding creating a sanctuary, scoliosis as an a...
17 Kesä 20206min
