Book, Movie and Spotify Recommendations & Study Recommends a Lower Radiation Dose for Spinraza Scans
Forums Director Kevin Schaefer shares some book, movie, and Spotify recommendations for people who are on quarantine. SMA News Today’s multimedia associate, Price Wooldridge, discusses a study which ...
27 Maalis 20208min
Alternative Solutions to Physical Therapy During the COVID-19 Pandemic
Forums Director Kevin Schaefer talks about alternative solutions to physical therapy. As a result of the COVID-19 pandemic, he has to refrain from going to his appointments for now. Also, believe it ...
25 Maalis 20204min
New Test Screens 420 Genes for Markers of SMA & A Message to Friends, Family About COVID-19
Forums moderator DeAnn Runge shares her message to friends and family in regards to COVID-19 and their lives being turned upside down. SMA News Today’s multimedia associate, Price Wooldridge, discuss...
23 Maalis 20205min
Tips For Self-Isolation During the Coronavirus & SYT13 Gene Can Prolong Life in Mice With SMA
Forums Director Kevin Schaefer shares some of his tips for self-isolation during the Coronavirus (COVID-19) outbreak. SMA News Today’s multimedia associate, Price Wooldridge, discusses how the synapt...
20 Maalis 20206min
Coronavirus (COVID-19): Precautions, Protecting Yourself and Staying Productive During Lockdown
One of the main topics of conversation over on the forums is COVID-19. Posted are links to resources and tips on staying productive during lockdown. DeAnn also discusses where to find the latest SMA...
18 Maalis 20205min
#54 - Roundtable About Corona Virus
In episode 54, Michael and I discuss the global outbreak of Coronavirus (COVID-19). We share our tips for how others in the SMA community can best protect themselves, as well as their caregivers. Plea...
17 Maalis 202018min
Risdiplam Under FDA Review & How the Lack of SMA Protein May Also Directly Contribute to SMA
Anticipation is growing as Roche/Genentech's treatment risdiplam, the first oral medication to treat SMA, is under FDA review. SMA News Today’s multimedia associate, Price Wooldridge, discusses how t...
16 Maalis 20207min
Importance of Physical Therapy & Institute for Gene Therapies to Modernize Reimbursement Framework
SMA News Today’s Senior Director of Multichannel Content, Michael Morale, discusses the importance of physical therapy, and how physical therapy can not only help avoid problems, but also correct some...
13 Maalis 20205min
