#24 - Abby Quinn & Kristen

#24 - Abby Quinn & Kristen

SMA News Today Community Editor Kevin Schaefer interviews Abby Quinn and Kristen Bathe -- childhood friends who run an inclusive fashion line for people with disabilities. Read all about them here: https://smanewstoday.com/forums/forums/topic/11323/

Jaksot(443)

Neurofilaments May Not Be Biomarker for Older Patients & The New CDC Mask Recommendations

Neurofilaments May Not Be Biomarker for Older Patients & The New CDC Mask Recommendations

SMA News Today’s multimedia associate, Price Wooldridge, discusses how neurofilaments may not be a biomarker for older patients with Spinal Muscular Atrophy (SMA) Type 1. Also, DeAnn Runge discusses ...

21 Touko 20218min

Warning of TMA, Rare Blood Disorder, Added to Zolgensma’s Safety Label & Friendships and SMA

Warning of TMA, Rare Blood Disorder, Added to Zolgensma’s Safety Label & Friendships and SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses adding thrombotic microangiopathy (TMA) to the list of safety concerns for Zolgensma. Also, Forums Director Kevin Schaefer reads a c...

19 Touko 20219min

#82: Interview with Hawken Miller, Journalist with Muscular Dystrophy

#82: Interview with Hawken Miller, Journalist with Muscular Dystrophy

In episode 82, host Kevin Schaefer talks with Hawken Miller from Newport Beach, California. Hawken is a features writer for SMA News Today’s parent company, BioNews, as well as a columnist for Muscula...

18 Touko 202136min

Sex And The Number of Copies of The SMN 2 Gene Can Influence Age of Onset for SMA Type 3 Patients

Sex And The Number of Copies of The SMN 2 Gene Can Influence Age of Onset for SMA Type 3 Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses how sex, and the number of copies of the SMN 2 gene influence age of onset for Spinal Muscular Atrophy Type 3 patients. Also, DeAnn ...

17 Touko 202113min

UK NICE Expands Access to Spinraza for SMA Type 3 & The Disappointment of a Jaco Robotic Arm Denial

UK NICE Expands Access to Spinraza for SMA Type 3 & The Disappointment of a Jaco Robotic Arm Denial

SMA News Today’s multimedia associate, Price Wooldridge, discusses how UK NICE expands access to Spinraza for Spinal Muscular Atrophy (SMA) Type 3 patients. Also, DeAnn Runge talks about how disappoi...

14 Touko 20216min

German Study Urges Newborn SMA Screening, Citing Better Outcomes & Managing Chaos

German Study Urges Newborn SMA Screening, Citing Better Outcomes & Managing Chaos

SMA News Today’s multimedia associate, Price Wooldridge, discusses a German study which recommends newborn screening for Spinal Muscular Atrophy (SMA), citing better outcomes. Also, Forums Director K...

12 Touko 20219min

Grant Awarded to Find Affordable Treatments for Children & SMA Would You Rather

Grant Awarded to Find Affordable Treatments for Children & SMA Would You Rather

SMA News Today’s multimedia associate, Price Wooldridge, discusses a grant awared to find affordable treatments for children with Spinal Muscular Atrophy (SMA). Also, on the forums a fun game of SMA ...

10 Touko 20215min

Novartis Poised for Phase 3b SMART Study of Zolgensma & SMA Adventures

Novartis Poised for Phase 3b SMART Study of Zolgensma & SMA Adventures

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Novartis is poised for their Phase 3b SMART study of Zolgensma. Also, DeAnn Runge shares a recent adventure she went on to a gre...

7 Touko 20219min

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