EMBRACE Trial Supports Spinraza’s Benefits in Broad Range of SMA Patients
SMA News Today’s multimedia associate, Price Wooldridge, discusses the EMBRACE Trial which supports Spinraza’s benefits in a broad range of Spinal Muscular Atrophy (SMA) patients. Also, DeAnn Runge w...
15 Helmi 202112min
NORD’s 6th ‘State Report Card’ Notes Progress, Raises Concerns
SMA News Today’s multimedia associate, Price Wooldridge, discusses the National Organization for Rare Disorders (NORD) 6th “state report card”, noting progress, but raising concerns. Plus, closing in...
12 Helmi 20217min
Rare Disease Groups, Pharmas Join SMA Europe Push for Newborn Screening
SMA News Today’s multimedia associate, Price Wooldridge, discusses rare disease groups and pharmaceutical companies, joining SMA Europe in a push for newborn screening for Spinal Muscular Atrophy (SMA...
10 Helmi 20217min
Motor Function, Breathing Important in Choosing Treatment
SMA News Today’s multimedia associate, Price Wooldridge, discusses improvement in motor function, breathing, and ease of administration are important factors when Spinal Muscular Atrophy (SMA) patient...
8 Helmi 20218min
More Severe COVID-19 Symptoms Seen in Children with SMA Type 1
SMA News Today’s multimedia associate, Price Wooldridge, discusses more severe COVID-19 symptoms being seen in children with Spinal Muscular Atrophy (SMA) Type 1. Also, vlogger and forums moderator D...
5 Helmi 20217min
Better Ways of Capturing Progression in Types 2 and 3 Identified in Study
SMA News Today’s multimedia associate, Price Wooldridge, discusses better ways of capturing progression of motor abilities in Spinal Muscular Atrophy (SMA) Types 2 and 3. Forums Director Kevin Schaef...
3 Helmi 202110min
#75: Alvaro Cheherlian, Founder and CEO of Wrekt Svpply
In episode 75, host Kevin Schaefer talks with Alvaro Cheherlian from Sylmar, California. Alvaro is the founder and CEO of Wrekt Svpply, a clothing brand company. He talks about building his business, ...
2 Helmi 202138min
Cure SMA Booklet Outlines Possible Risks, Benefits of Combining Treatments
SMA News Today’s multimedia associate, Price Wooldridge, discusses a Cure SMA booklet which outlines the possible risks and benefits of combining treatments for Spinal Muscular Atrophy (SMA). Also, ...
1 Helmi 20216min
