Study Finds Respiratory Weakness in SMA is Most Pronounced in Childhood & Treatment Options for SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study finds respiratory weakness in SMA is most pronounced in childhood. Since 2016 several treatment options for SMA have beco...
1 Kesä 20209min
SMA Treatment and Screening Programs “Essential” in The Covid-19 Pandemic
Forums Director Kevin Schaefer talks about how video games can benefit rare disease patients in hospitals right now, including those with neuromuscular conditions like SMA. SMA News Today’s multimedi...
29 Touko 20209min
Risdiplam, Switching Treatments & Difficult Breathing While Wearing Masks
Forums Director Kevin Schaefer talks about the investigational therapy risdiplam, and whether or not he would consider switching treatments. Masks are a hot topic on the forums. With finding it diffi...
27 Touko 20206min
Study Addresses Dilemmas Regarding Newborn Screening and SMA Treatment
Despite not being able to shop in person, DeAnn Runge finds a way to replace her television that decided to quit working at the most inopportune time. SMA News Today’s multimedia associate, Price Woo...
25 Touko 20208min
How a Family and Doctor “Partnership” That Led to a Baby’s Spinraza Treatment
Forums Director Kevin Schaefer reads the latest post from caregiver columnist Michael Casten. SMA News Today’s multimedia associate, Price Wooldridge, discusses a family and doctor “partnership” that...
22 Touko 20207min
Fatigue Experienced Prior Spinraza Injection & Cure SMA COVID-19 Care Package
Forums Director Kevin Schaefer talks about the fatigue he experiences prior to a Spinraza injection. DeAnn’s latest vlog has been posted where she shows what’s included in the Cure SMA COVID-19 care ...
20 Touko 20205min
#58 - How COVID-19 Affects Spinraza and Other Medical Appointments
In episode 58, the SMA News Today team talks about how the COVID-19 pandemic is impacting their Spinraza appointments and other medical procedures. Hosts Kevin Schaefer and Michael Morale, and forum m...
19 Touko 202029min
How Lung Ultrasound is a Reliable Option to Chest X-rays for Monitoring Children
Forums moderator DeAnn Runge shares how she’s navigating the current world situation and how resuming operations in the next phase poses new challenges and concerns. SMA News Today’s multimedia assoc...
18 Touko 20209min
