#27 Interview With Michele Erwin

#27 Interview With Michele Erwin

In episode 27 of the SMA News Today Podcast, Community Editor Kevin Schaefer interviews Michele Erwin, whose son Greyson has SMA. Michele is the founder of All Wheels Up, an organization dedicated to improving flight accommodations for wheelchair-users. In this interview, Michele talks about being a disability advocate, and how it coincides with parenting a child with SMA.

Jaksot(443)

#60 - Interview With George Corbin

#60 - Interview With George Corbin

In episode 60, host Kevin Schaefer interviews George Corbin from Neptune, New Jersey. George is a graduate of Temple University, and he has SMA type 3. He currently works as a mortgage loan officer. ...

16 Kesä 202036min

How Heart Problems in SMA May Be Tied To Calcium Dysregulation

How Heart Problems in SMA May Be Tied To Calcium Dysregulation

SMA News Today’s multimedia associate, Price Wooldridge, discusses how heart problems in SMA may be tied to calcium dysregulation. Forums moderator DeAnn Runge shares her thoughts on why reflecting o...

15 Kesä 20207min

SHINE Study Data Finds Spinraza Shows Sustained Efficacy Over Years of Use

SHINE Study Data Finds Spinraza Shows Sustained Efficacy Over Years of Use

SMA News Today’s multimedia associate, Price Wooldridge, discusses the SHINE study data showing Spinraza has sustained efficacy. In Brianna Albers’ latest column, she calls for more black representat...

12 Kesä 202012min

Cure SMA Conference Going Virtual in 2020 & Tips On Purchasing A New Electric Wheelchair

Cure SMA Conference Going Virtual in 2020 & Tips On Purchasing A New Electric Wheelchair

Forums Director Kevin Schaefer talks about celebrating six years with his caregiver Randy. With the Cure SMA Conference going virtual this year it’s led to many topics of conversation on the forums. ...

10 Kesä 20207min

Feeding Issues Are Still Common Among SMA Type 1 Infants, Despite New Therapy Options

Feeding Issues Are Still Common Among SMA Type 1 Infants, Despite New Therapy Options

SMA News Today’s multimedia associate, Price Wooldridge, discusses how feeding issues still are common among SMA Type 1 infants, despite new therapy options. As salons open up forums moderator talks ...

8 Kesä 20206min

Real-World Study Shows That Spinraza Meets Most Therapeutic Expectations of Adult SMA Patients

Real-World Study Shows That Spinraza Meets Most Therapeutic Expectations of Adult SMA Patients

SMA News Today’s, Senior Director of Multichannel Content, Michael Morale, discusses a real-world study that shows that Spinraza meets most therapeutic expectations of adult SMA patients. Forums Dire...

5 Kesä 202012min

#59 - A Conversation with Brianna Albers

#59 - A Conversation with Brianna Albers

In episode 59, host Kevin Schaefer talks with our very own columnist Brianna Albers. Brianna talks about quarantine, values-based living, and how she's keeping herself occupied during the COVID-19 pan...

4 Kesä 202038min

Tips For Staying Active and Mentally Engaged This Summer & How The JACO Robotic Arm Opens Doors

Tips For Staying Active and Mentally Engaged This Summer & How The JACO Robotic Arm Opens Doors

Forums Director Kevin Schaefer shares some tips for staying active and mentally engaged this summer, while still remaining in self-isolation. A hot topic on the forums is how the JACO Robotic Arm ope...

3 Kesä 20205min

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