#39 - Interview With Jason Bertsch
In episode 39 of the SMA News Today Podcast, host Kevin Schaefer interviews Jason Bertsch from Greenfield, Indiana. Jason and his wife Kelly have two sons, and their youngest, Luke, has SMA Type 2. Ja...
6 Elo 201933min
European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence
We discuss how European SMA advocates question the EU’s willingness to reimburse for Zolgensma. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about claiming your independenc...
5 Elo 20198min
#38 - Roundtable Discussion - Discussion for July 2019
In the latest episode of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale discuss updates regarding SMA therapies Spinraza and Reldesemtiv. Also, Kevin and columnist Brianna Albers ...
16 Heinä 201940min
#37 - Interview With Courtney Smith And Trevor Rogerson
In episode 37 of the SMA News Today Podcast, host Kevin Schaefer interviews Courtney Smith and her boyfriend Trevor Rogerson. They live in Seattle, Washington, and Courtney has SMA Type 2. Are you in...
2 Heinä 201920min
#35 - Interview With Mike Blakey
In episode 35 of the SMA News Today Podcast, host Kevin Schaefer interviews Mike Blakey from Gainesville, Florida. Mike is a part-time CPA and attorney, and he has SMA Type 3." Photo Contributed by M...
4 Kesä 201936min
#34 - Roundtable Discussion - Discussion for May 2019
In episode 34 of the SMA News Today Podcast, hosts Kevin Schaefer and Michael Morale talk about the latest SMA news and perspectives from May 2019. Topics include clinical trial updates from the 2019 ...
21 Touko 201928min
Upper Survival Rate For Adults And Children With Neuromuscular Disorders & Being Kind
We discuss how the survival rate is up for adults and children with neuromuscular disorders. Also, SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how showing respect and ...
17 Touko 20198min
Study on How Leuprorelin Acetate Reduces Swallowing Dysfunctions in SBMA & Unique Interactions
SMA News Today’s Director of Multichannel Content, Michael Morale, discusses a study that finds how Leuprorelin Acetate may reduce swallowing dysfunctions in SBMA patients. Also, Community Development...
15 Touko 20199min
