Spinraza for Most SMA Patients in China & Ben Mattlin's Book on Inter-abled Relationships

Spinraza for Most SMA Patients in China & Ben Mattlin's Book on Inter-abled Relationships

We discuss how China has approved Spinraza for most SMA patients. Also, Community Editor Kevin Schaefer reads from his review of a book about inter-abled relationships by Ben Mattlin. Mattlin is a Los Angeles-based writer with SMA Type 2, and this review is available on our main website and on our forums. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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‘Wearable Cyborg’ Helps Improve Walking Ability And Muscle Strength

‘Wearable Cyborg’ Helps Improve Walking Ability And Muscle Strength

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a wearable cybernetic leg significantly improves walking ability for people with neuromuscular disabilities such as Spinal Muscul...

26 Heinä 20218min

VRK1 Mutations Were Found in Two Adult-Onset SMA Hispanics & the SSI Restoration Act of 2021

VRK1 Mutations Were Found in Two Adult-Onset SMA Hispanics & the SSI Restoration Act of 2021

SMA News Today’s multimedia associate, Price Wooldridge, discusses how VRK1 mutations were found in two adult-onset Spinal Muscular Atrophy (SMA) Hispanics. In the forums there are a lot of great disc...

23 Heinä 20219min

COVID-19 Infection Turns Severe in SMA Type  1 Child & Treating Your Body Right

COVID-19 Infection Turns Severe in SMA Type 1 Child & Treating Your Body Right

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a COVID-19 infection turns severe in a Spinal Muscular Atrophy (SMA) Type 1 child. News article: https://smanewstoday.com/news-po...

21 Heinä 202110min

#86: Price Wooldridge, The Voice Behind the SMA Flash Briefings

#86: Price Wooldridge, The Voice Behind the SMA Flash Briefings

In episode 86, host Kevin Schaefer talks with Price Wooldridge from Fort Worth, Texas. Price is a voiceover contributor for the SMA News Today flash briefings, and he lives with a rare autoimmune dise...

20 Heinä 202139min

Sma Treatment May Be More Effective by Altering an Underlying Molecule & Having a Service Dog

Sma Treatment May Be More Effective by Altering an Underlying Molecule & Having a Service Dog

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) treatment may be more effective by altering an underlying molecule. DeAnn Runge shares what having...

19 Heinä 20216min

Spinraza Improves Motor Function in Children And Adults With SMA Type 3 Children

Spinraza Improves Motor Function in Children And Adults With SMA Type 3 Children

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improves motor function in Spinal Muscular Atrophy (SMA) Type 3 children. In recognition of Disability Pride Month, D...

16 Heinä 202114min

Stem Cell Therapy May Benefit Some Type 1 Infants & Disability Pride Month

Stem Cell Therapy May Benefit Some Type 1 Infants & Disability Pride Month

SMA News Today’s multimedia associate, Price Wooldridge, discusses a stem cell therapy which may benefit some Spinal Muscular Atrophy (SMA) Type 1 infants. Also, Kevin Schaefer shares his thoughts on...

14 Heinä 20217min

People in UK Urged to Sign Petition Adding SMA to Newborn Screening

People in UK Urged to Sign Petition Adding SMA to Newborn Screening

SMA News Today’s multimedia associate, Price Wooldridge, discusses the UK SMA Newborn Screening Alliance calling on people to take action and sign a petition requesting Spinal Muscular Atrophy (SMA) b...

12 Heinä 20218min

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