#37 - Interview With Courtney Smith And Trevor Rogerson

#37 - Interview With Courtney Smith And Trevor Rogerson

In episode 37 of the SMA News Today Podcast, host Kevin Schaefer interviews Courtney Smith and her boyfriend Trevor Rogerson. They live in Seattle, Washington, and Courtney has SMA Type 2. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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#93: Interview With Garrett Lerner, Co-creator and Executive Producer of NBC Series “Ordinary Joe”

#93: Interview With Garrett Lerner, Co-creator and Executive Producer of NBC Series “Ordinary Joe”

In episode 93, host Kevin Schaefer talks with Garrett Lerner from Los Angeles, California. Garrett is the co-creator and co-showrunner of the NBC drama series “Ordinary Joe,” and he is a father to a s...

2 Marras 202144min

Phase 3 Apitegromab Trial Planned for Non-ambulatory Types 2 And 3 & Latest Topics on Our Forums

Phase 3 Apitegromab Trial Planned for Non-ambulatory Types 2 And 3 & Latest Topics on Our Forums

SMA News Today’s multimedia associate, Price Wooldridge, discusses an article on how Scholar Rock plans to initiate a Phase 3 trial of apitegromab in spinal muscular atrophy types 2 and 3 patients una...

28 Loka 20217min

Neurofilament Blood Levels Likely to Predict Treatment Response in SMA

Neurofilament Blood Levels Likely to Predict Treatment Response in SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses a news article on how blood levels of phosphorylated neurofilament heavy chain, nerve cell damage marker, are related to greater moto...

25 Loka 20219min

Quality of Life Survey Aims to Help Inform SMA Community Needs & Situations That Could’ve Gone Wrong

Quality of Life Survey Aims to Help Inform SMA Community Needs & Situations That Could’ve Gone Wrong

SMA News Today’s multimedia associate, Price Wooldridge, reads the SMA News Today article, “New Quality of Life Survey Aims to Help Inform SMA Community Needs”. Also, over on the forums there was jus...

21 Loka 20218min

#92: Discussing Disability and Employment

#92: Discussing Disability and Employment

In episode 92, host Kevin Schaefer talks with fellow SMA News Today contributors to discuss each other’s work experiences. October is recognized in the United States as National Disability Employment ...

19 Loka 202147min

Pre-symptomatic Infants Retain Swallowing Ability in Evrysdi Trial

Pre-symptomatic Infants Retain Swallowing Ability in Evrysdi Trial

SMA News Today’s multimedia associate, Price Wooldridge, reads an article on how pre-symptomatic infants with SMA have retained the ability to swallow after being treated with Evrysdi for at least one...

18 Loka 20216min

Spinraza RESPOND Trial Enrolling Children Not Helped by Zolgensma

Spinraza RESPOND Trial Enrolling Children Not Helped by Zolgensma

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) children not helped by Zolgensma, are being enrolled in the Spinraza RESPOND trial. Plus, usually ...

14 Loka 202110min

Low Bone Density Puts SMA Children in China at Risk for Fractures & DeAnn Runge's Favorite Hobbies

Low Bone Density Puts SMA Children in China at Risk for Fractures & DeAnn Runge's Favorite Hobbies

SMA News Today’s multimedia associate, Price Wooldridge, discusses how low bone density puts Spinal Muscular Atrophy (SMA) children in China at risk for fractures. Plus, DeAnn Runge talks about one o...

11 Loka 202110min

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