Muscular Dystrophy Canada Funds Projects on Newborn SMA Screening
SMA News Today’s multimedia associate, Price Wooldridge, discusses the award of funds by Muscular Dystrophy Canada for Spinal Muscular Atrophy (SMA) newborn screening. Also, Kevin Schaefer reads a c...
11 Elo 20218min
Spinraza Improves Lung Function in SMA Type 2 Child, Report Says
SMA News Today’s multimedia associate, Price Wooldridge, discusses improved lung function with Spinraza in a Spinal Muscular Atrophy (SMA) Type 2 child. Also, As DeAnn Runge awaits the arrival of her...
9 Elo 20217min
Why My Journey With Disability Pride Isn’t Linear & 31 Days of SMA Initiative
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup at a Time, “Why My Journey With Disability Pride Isn’t Linear”. Also, in recognition of SMA Aw...
6 Elo 20217min
Novartis Stopping Work on Branaplam as Oral SMA Therapy & 31 Days of SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses Novartis stopping work on the development of Branaplam as an oral treatment for Spinal Muscular Atrophy (SMA). Forums Director Kevin...
4 Elo 20216min
#87: Interview with Allie Williams, Vocal Coach and Disability Advocate
In episode 87, host Kevin Schaefer talks with Allie Williams from Stillwater, Oklahoma. Allie is a vocal coach and she has SMA Type II. She talks about her lifelong musical journey, dealing with acces...
3 Elo 202142min
Early Work Supports Apitegromab’s Safety as SMA Muscle Therapy & Jaco Robotic Arm Approval
SMA News Today’s multimedia associate, Price Wooldridge, discusses early work that supports Apitegromab’s safety as a Spinal Muscular Atrophy (SMA) therapy. Also, after a yearlong battle DeAnn Runge ...
2 Elo 202110min
SadBaby Crowdfunding Aims to Help SMA Families & Accessibility, Disability Pride and Success
SMA News Today’s multimedia associate, Price Wooldridge, discusses SadBaby, an organization raising donations to support children with Spinal Muscular Atrophy (SMA). Also, SMA News Today content crea...
30 Heinä 20217min
Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds
SMA News Today’s multimedia associate, Price Wooldridge, discusses a partnership which aims to lower out-of-pocket costs for rare disease medications. Also, Forums Director Kevin Schaefer reads a col...
28 Heinä 20219min
