Rising From the Ashes and Flying With Broken Wings & Finding My Voice In the Disability Community
SMA News Today’s multimedia associate, Price Wooldridge, reads a column by Hasley Blocher, “From Where I Sit”, Rising From the Ashes an Flying With Broken Wings. SMA News Today’s forums moderator, De...
25 Joulu 20207min
Financial Burden of SMA Much Higher Than Other Conditions & The Mental Benefits of Physical Therapy
SMA News Today’s multimedia associate, Price Wooldridge, discusses the higher financial burden on Spinal Muscular Atrophy (SMA) patients, compared to other conditions. SMA News Today’s Columnist and...
23 Joulu 202012min
Measuring Neurological Impact of Polio Proves Useful in SMA, Study Reports
SMA News Today’s multimedia associate, Price Wooldridge, discusses how measuring the neurological impact of Polio proves useful in studying patients with Spinal Muscular Atrophy (SMA). SMA News Today...
21 Joulu 202010min
Genetic Analysis of Families Finds Novel Mutations in SMA & The Lack Of Privacy When Living With SMA
SMA News Today’s multimedia associate, Price Wooldridge, discusses a genetic analysis of families with a member affected by Spinal Muscular Atrophy (SMA) which finds novel mutations in SMA patients. ...
18 Joulu 202010min
Zolgensma-associated Liver Abnormalities Common but Manageable & I’m Disappointed, and That’s OK
SMA News Today’s multimedia associate, Price Wooldridge, discusses a study which finds Zolgensma-associated liver abnormalities are common but manageable in children with Spinal Muscular Atrophy (SMA)...
16 Joulu 202011min
#72: Evrysdi, Physical and Mental Health, and Highlights of 2020
In episode 72, Kevin Schaefer and Michael Morale reflect on the craziness of 2020, and they highlight some of the key pieces of content SMA News Today created this year. They also discuss Michael’s on...
15 Joulu 202047min
Neurological Alliance Report Calls for Better Treatment, Care for UK Patients
SMA News Today’s multimedia associate, Price Wooldridge, discusses a Neurological Alliance report calling for better treatment and care of U.K. patients living with rare neurological conditions such a...
14 Joulu 20207min
Spinraza Linked to Temporary Abnormalities in Immune Cells in 2 SMA Infants
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza is linked to temporary abornalities in immune cells in two Spinal Muscular Atrophy (SMA) infants. SMA News Today’s foru...
11 Joulu 20209min
