How Memories Of a Dying Shopping Mall Made Kevin Schaefer About Adapting to Change
Forums Director Kevin Schaefer talks about memories of a dying shopping mall in his hometown, and how it made him think about adapting to change. DeAnn Runge shares the latest column by Brianna Alber...
21 Loka 202010min
#68 - Getting A New Wheelchair
In this episode, host Kevin Schaefer talks with DeAnn Runge, vlogger and forum moderator for SMA News Today. DeAnn talks about acquiring her new service dog, Horton, and adapting to life with him. S...
20 Loka 202046min
4-aminopyridine Fails to Improve Muscle Function in SMA Type 3 Patients & New Service Dog
SMA News Today’s multimedia associate, Price Wooldridge, discusses 4-aminopyridine’s failure to improve muscle function in SMA Type 3 patients. DeAnn Runge talks about how her new service dog Horton ...
19 Loka 20208min
SMA Type 1 Infants Treated With Zolgensma Achieving Milestones, Data Show
SMA News Today’s multimedia associate, Price Wooldridge, discusses SMA Type 1 infants, treated with Zolgensma, are achieving milestones. Are you interested in learning more about spinal muscular atro...
16 Loka 20207min
Spontaneous Trips, Reading, Socially Distant Celebrations, Delayed Deliveries & More
Forums Director Kevin Schaefer talks about a spontaneous trip he took on his 26th birthday last year, and the adventures that came from it. A variety of topics are being discussed in the forums. Amo...
14 Loka 20207min
Infants Receiving Evrysdi Continue to Improve and Achieve Motor Milestones
SMA News Today’s multimedia associate, Price Wooldridge, discusses infants who are receiving Evrysdi continue to improve and achieve motor milestones in phase 2 and 3 trial data. In light of National...
12 Loka 20209min
Novartis to Open, at FDA Request, New Trial of Zolgensma for Older Patients
SMA News Today’s multimedia associate, Price Wooldridge, discusses Novartis opening, at FDA request, a new trial of Zolgensma for older patients. Are you interested in learning more about spinal musc...
9 Loka 20207min
How SMA Affects Your Ability to Draw, Treasuring Little Things & Setting Boundaries With Caregivers
Forums Director Kevin Schaefer talks about how SMA has affected his ability to draw, and about treasuring the little things. Recent topics being discussed in the SMA News Today forums include setting...
7 Loka 20205min
