Telemedicine, Therapy Platforms, Alternative Exercise Routines & Hospital Preparedness Folders
Forums Director Kevin Schaefer reads from his latest column about a new at-home exercise routine he’s developed, using his electric ceiling lift. Also, on our forums over the last week we’ve covered ...
29 Huhti 20205min
Discussing Motor Gains and Safety with Zolgensma’s IT Use in a STRONG Trial
While thinking about how to navigate the Coronavirus situation, forums moderator DeAnn Runge draws parallels to a family game they played. SMA News Today’s multimedia associate, Price Wooldridge, disc...
27 Huhti 20209min
First Patient Treated in The Phase 2/3 Trial, Assessing Higher Doses of Spinraza
Forums Director Kevin Schaefer writes about a new at-home exercise routine he’s developed, using his electric ceiling lift. SMA News Today’s multimedia associate, Price Wooldridge, discusses the firs...
24 Huhti 20206min
Playing Phone Games and Nintendo Switch & Home Exercise Routines and Robotic Assistance Devices
Forums Director Kevin Schaefer talks about how the pop-culture icon Kevin Smith impacted his life, both as a writer and as a person with a disability. Also, there have been some recent discussions on...
22 Huhti 20206min
#56 - SMA Treatments Overview and “Crip Camp” Discussion
In episode 56, hosts Kevin Schaefer and Michael Morale provide an overview of the different SMA treatments, and discuss recent news about the experimental therapy risdiplam. Then in part two, specia...
21 Huhti 202050min
How Adult Patients with SMA Benefit From Spinraza Treatments
To increase her independence, forums moderator DeAnn Runge is debating if she should pursue a service dog, a JACO Robotic Arm or both. Each option presents with pros and cons. SMA News Today’s multim...
20 Huhti 20209min
Ideas for Staying Fit and Healthy During Isolation & Approval of Zolgensma for Treating SMA in Japan
Forums Director Kevin Schaefer talks about ideas for staying fit and healthy during COVID-19 isolation. SMA News Today’s multimedia associate, Price Wooldridge, discusses the approval of Zolgensma fo...
17 Huhti 20205min
Accessible Toys, Having Fun With Subscription Boxes & Kevin Schaefer's Obsession With Action Figures
The Easter holiday looked a lot different this year than it traditionally does. Forum members shared their plans for the holiday to make it special. Accessible toys was another topic of conversation. ...
15 Huhti 20206min
