European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence

European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence

We discuss how European SMA advocates question the EU’s willingness to reimburse for Zolgensma. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about claiming your independence while living with SMA. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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Stress-induced Protein May Serve as New SMA Biomarker in Infants

Stress-induced Protein May Serve as New SMA Biomarker in Infants

SMA News Today’s multimedia associate, Price Wooldridge, discusses how a stress-induced protein may serve as a new Spinal Muscular Atrophy (SMA) biomarker in infants. Also, SMA News today brings a va...

7 Kesä 20218min

Apitegromab, Muscle-directed Therapy for SMA, Put on FDA Fast Track

Apitegromab, Muscle-directed Therapy for SMA, Put on FDA Fast Track

SMA News Today’s multimedia associate, Price Wooldridge, discusses Apitegromab being granted a fast track designation by the U.S. Food and Drug Administration. DeAnn Runge talks about her upcoming ap...

4 Kesä 20216min

SMN2 Copy Number and Rare Variant Influence SMA Severity

SMN2 Copy Number and Rare Variant Influence SMA Severity

SMA News Today’s multimedia associate, Price Wooldridge, discusses how the SMN2 copy number and a rare genetic variant influence the severity of Spinal Muscular Atrophy (SMA). Also, Forums Director K...

2 Kesä 202110min

#83: Interview with Christine Getman and Scottie Foertmeyer, Couple and Magic Wheelchair Executives

#83: Interview with Christine Getman and Scottie Foertmeyer, Couple and Magic Wheelchair Executives

In episode 83, host Kevin Schaefer talks with Christine Getman and Scottie Foertmeyer from Portland, Oregon. Christine and Scottie are partners in life and in business, as they run the nonprofit Magic...

1 Kesä 202152min

SMA May Carry Higher Risk of Fluid Buildup in The Brain & Reflections on Memorial Day

SMA May Carry Higher Risk of Fluid Buildup in The Brain & Reflections on Memorial Day

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy may carry a higher risk of fluid buildup in the brain. Also, DeAnn Runge shares her reflections on Memor...

31 Touko 20219min

Apitegromab Safely Counters a Muscle Growth Suppressor in Patients With SMA

Apitegromab Safely Counters a Muscle Growth Suppressor in Patients With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Apitegromab safely counters a muscle growth suppressor in patients with Spinal Muscular Atrophy (SMA). Also, DeAnn Runge has mix...

28 Touko 20219min

Cure SMA Offers US Patients Free Tools to Boost Their Independence & Managing Fatigue With SMA

Cure SMA Offers US Patients Free Tools to Boost Their Independence & Managing Fatigue With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses free tools being offered by Cure SMA to boost the independence of Spinal Muscular Atrophy (SMA) patients. Also, Forums Director Kevi...

26 Touko 20217min

Remembering to Prioritize Mental Health & Self-Esteem, Post Vaccination Plans and More

Remembering to Prioritize Mental Health & Self-Esteem, Post Vaccination Plans and More

SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup At a Time, “I’m Remembering to Prioritize My Mental Health”. DeAnn Runge talks about the hot t...

24 Touko 20216min

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