#124: A conversation with an interabled couple, Steve and Brittany Bingman
In episode 124, host Kevin Schaefer talks with Steve and Brittany Bingman from Mount Juliet, Tennessee. Steve is an administrative officer at the U.S. department of veteran affairs, and he lives with ...
21 Helmi 202346min
#123: A Conversation With LaMondre Pough and Gabrielle Runyon, Two Black Disability Advocates
In episode 123, host Kevin Schaefer talks with returning guests LaMondre Pough and Gabrielle Runyon, two Black Disabled advocates. In recognition of Black History Month, LaMondre and Gabrielle share t...
7 Helmi 202352min
#122: A Conversation With Rare Disease Advocates
In episode 122, host Kevin Schaefer talks with three of his coworkers from BioNews Inc., the parent company of SMA News Today. Brittany Foster is BioNews’ HR Coordinator, and she lives with pulmonary ...
17 Tammi 202358min
#121: Pidgie, Singer and Songwriter With SMA
In episode 121, host Kevin Schaefer talks with Patricia Panzarino, who goes by her musician name, Pidgie. Pidgie is a singer and songwriter from Cape Cod, Massachusetts, and she has SMA Type 2. She di...
4 Tammi 202338min
#120: Dom Evans, Activist and Filmmaker
In episode 120, host Kevin Schaefer talks with Dom Evans (he/they), LGBTQ and disability activist and filmmaker. Dom discusses his background, growing up with SMA, and how he became an activist. He al...
20 Joulu 202250min
#119: Chaz Hayden Discusses His Debut Novel
In episode 119, host Kevin Schaefer talks with Chaz Hayden, a young adult author with SMA. Chaz’s debut novel, The First Thing About You, tells the story of a 15-year-old boy with SMA named Harris who...
6 Joulu 202241min
#117: Delphine Andrews and Kevin Davis, Interabled Couple
In episode 117, host Kevin Schaefer talks with Delphine Andrews and Kevin Davis from North Carolina. Delphine has SMA and she began dating Kevin in early 2020. They discuss their careers, daily lives,...
1 Joulu 202253min
#118: Aging and SMA
In episode 118, host Kevin Schaefer talks with work colleagues Michael Morale and DeAnn Runge about aging and SMA. They start by discussing Scholar Rock’s experimental therapy, Apitegromab, and go ove...
22 Marras 202252min
