European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence

European SMA Advocates Question The EU’s Willingness to Reimburse Zolgensma & Independence

We discuss how European SMA advocates question the EU’s willingness to reimburse for Zolgensma. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about claiming your independence while living with SMA. Are you interested in understanding gene therapy? ExploreGeneTherapy.com has helpful information about gene therapy, including its history and how it is being investigated for the treatment of genetic diseases. Visit www.exploregenetherapy.com

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#7 - Interview With SMA Parent & Adyn's Dream Founder Brian Bucher

#7 - Interview With SMA Parent & Adyn's Dream Founder Brian Bucher

SMA News Today Community Editor Kevin Schaefer interviews Brian Bucher -- a parent of a child with SMA and founder of Aydn's Dream. Brian talks about his family's experience with the disease, his effo...

29 Maalis 201837min

SMA News & Perspectives - March 28, 2018

SMA News & Perspectives - March 28, 2018

SMA News & Perspectives - March 28, 2018 by SMA News Today

29 Maalis 20183min

SMA News & Perspectives - March 7, 2018

SMA News & Perspectives - March 7, 2018

SMA News & Perspectives - March 7, 2018 by SMA News Today

7 Maalis 20184min

#6 - Paul Guarino, Founder of PG Sports

#6 - Paul Guarino, Founder of PG Sports

SMA News Today interviews PG Sports Founder Paul Guarino. Visit the PG Sports homepage at: https://pg-sports.com

1 Maalis 201825min

#5 - Interview With Brynne Willis, Johns Hopkins University Graduate Student

#5 - Interview With Brynne Willis, Johns Hopkins University Graduate Student

In SMA News Today's fifth podcast, Community Editor Kevin Schaefer interviews Brynne Willis. Brynne is a graduate student at Johns Hopkins University where she is studying the psychological effects of...

13 Helmi 201823min

#4 - Interview With Dr. Danielle Sheypuk

#4 - Interview With Dr. Danielle Sheypuk

SMA News Today Community Editor interviews Dr. Danielle Sheypuk. Danielle is a renowned clinical psychologist with SMA who focuses her research on SMA and dating.

22 Tammi 201833min

#3 - Interview with Amazon Operations Manager Josh Garrison

#3 - Interview with Amazon Operations Manager Josh Garrison

In SMA News Today's third podcast, Community Editor Kevin Schaefer interviews Josh Garrison -- a person with SMA type 2 who works as an operations manager for Amazon. Josh discusses his work at Amazon...

12 Joulu 201724min

SMA News & Perspectives - November 28, 2017

SMA News & Perspectives - November 28, 2017

SMA News & Perspectives - November 28, 2017 by SMA News Today

30 Marras 20173min

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