Juicebox Podcast: Type 1 Diabetes30 Kesä 2022

#710 Joanne Milo Wants Her Data

Comment submissions are closed next Thursday (July 7th) so DO NOT WAIT to show your support. Instructions:

Tap on link: tinyurl.com/ct6n22ft
Fill in the comment box with your message
Select Option: Device Industry C0012
Enter your email
Tell about yourself: choose either Individual or Anonymous
Check the box that you have read/understood
Tap the GREEN Submit button
THAT'S IT! All in under 2 minutes!

Do you like continuous access to your CGM BG data so that your DIY Loop WORKS?! Do you know that we might lose that access with Dexcom G7 and Abbott Libre3 has never allowed access? I NEED YOU TO ACT ... IT MATTERS! Please join me in a letter-writing campaign to fill their inbox with our comments and concerns! NOW! Suggested text: "I live with insulin-requiring diabetes, an incurable chronic disease requiring continuous monitoring of blood glucose values and administration of insulin. It is imperative that access to my own devices remains possible. The ability to receive glucose values from my continuous glucose monitor and the ability to command my insulin pump to deliver insulin are already permitted and expected of me. In fact, if I don't do these, I will die. So please do not let medical device manufacturers use cybersecurity as a pretense to prevent me from accessing my own devices." When you put your name (or even if you post anonymously) consider including 'pwd' or 't1d' or however you identify yourself as someone with diabetes, I.e. 'Sally Smith, T1D' so that they know our community has a voice You can see the comments that have already been submitted and approved: https://www.regulations.gov/docket/FDA-2021-D-1158/comments

Tämä jakso on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi jakso saattaa sisältää mainontaa.

Jaksot(1930)

#1921 Yo Gabba Gabba

Diagnosed at two, a Pilates teacher has survived seizures too many to count. Somatic therapy, EMDR, a stimulant shortage, glucagon courage — and Scott's first-ever mid-episode bathroom break. ABLEnow ...

5 Elo 1h 30min

#1920 Jenna is 28 and Still Amazing

Sixteen years after diagnosis, a nutrition PhD student studies hospital food, manages with Omnipod 5 and Dexcom, and drops a surprise Scott never saw coming. ABLEnow save for today's needs or invest f...

4 Elo 1h 20min

#1919 Hurricane Levi

A mother in Zimbabwe on her son's diagnosis at four, $90 sensors paid in cash, a headmaster who said no, and the outdated insulin she didn't know was outdated. ABLEnow save for today's needs or invest...

3 Elo 1h 27min

#1918 Bad Reviews

I set a few of my worst reviews to music. Sing along! T1DExchange Juicebox Survey Juice Cruise 2027

1 Elo 8min

#1917 Around the World

Bella was diagnosed at four and spent two decades at an A1C near ten, with an endocrinologist whose method was yelling. She also bet Scott he couldn't guess what state she's from. ABLEnow save for tod...

31 Heinä 1h 8min

#1916 Chilly Reception

Christina has had type 1 for fifteen years. Her son William was diagnosed in DKA on a ski team trip to Chile, in a hospital where the care was entirely in Spanish — and the hardest part came after the...

30 Heinä 1h 24min

#1915 Island in the Sun

Eloise was diagnosed in DKA at seven, with a blood sugar of 750, while her family was between insurance plans. Her mom Eden talks about the bill, a school with no nurse, and finding her limit. ABLEnow...

29 Heinä 1h 42min

#1914 Kebab Explosion

Diagnosed at 37 in Germany, a week alone in COVID quarantine, an insulin pen and no instructions. Bar life, burnout, therapy, and one very good endo. ABLEnow save for today's needs or invest for tomor...

28 Heinä 1h 16min