I'm Sick and Nobody Will Help Me
About IBD30 Loka 2018

I'm Sick and Nobody Will Help Me

What have you done when you couldn't get anyone to take the symptoms of IBD seriously and you found yourself out of options? For Meredith, the road to a Crohn's disease diagnosis was long and so frustrating that she wound up pleading for help from a specialist she'd never met. Going online to connect with other patients also took Meredith to places both light and dark, and she, Jaime, and I sort through our various experiences with social media as well as how we can work towards creating more hopeful content for new IBD patients in the future. Concepts mentioned on this episode: What Are Mast Cells?: https://www.verywellhealth.com/what-are-mast-cells-1944889 What Is Gastroparesis?: https://www.verywellhealth.com/what-is-gastroparesis-1741788 Find Meredith Smolen at: Find Jaime Weinstein at: Find Amber J Tresca at: Additional sound engineering courtesy Mac Cooney, https://www.facebook.com/michaelandrewcooney/ "About IBD with Amber Tresca" © Cooney Studio http://cooneystudio.com/

Jaksot(200)

You Have To Do Your Research With Vegan Ostomy

You Have To Do Your Research With Vegan Ostomy

It's estimated that half of people who have an inflammatory bowel disease (IBD) try complementary and alternative medicine to treat their disease. Eric Polsinelli of Vegan Ostomy describes how he trie...

20 Touko 201840min

You Get Tired With Shawntel Bethea and Brooke Abbott

You Get Tired With Shawntel Bethea and Brooke Abbott

The healthcare space isn't a level playing field. Minority populations face complex challenges when it comes to accessing and receiving care, which is why April is designated as National Minority Heal...

8 Touko 201843min

This Is Just The Beginning With Michael Tresca

This Is Just The Beginning With Michael Tresca

Take a journey back to 1999, when cellphones were a rarity, dial-up internet access was still used, and Amber had her first surgery of the 2-step j-pouch process. Amber's husband Mike, a writer and co...

3 Huhti 201852min

Amber Answers the IBD Advocacy Tag Questions

Amber Answers the IBD Advocacy Tag Questions

Megan Johnson of The Front Butt YouTuber has presented 5 questions for people with IBD to answer and then tag someone else using #IBDAdvocacyTag. It's a great way to get to know people in the communit...

20 Maalis 201832min

You Have To Be Happy Within Yourself

You Have To Be Happy Within Yourself

Pregnancy and birth are different for women with IBD. There are not only challenges that come from the disease itself but the lack of awareness about IBD during pregnancy can lead to less than optimal...

6 Maalis 201840min

When IBD Gets Married With Jaime Weinstein

When IBD Gets Married With Jaime Weinstein

Getting married is a joyful time in one's life. Until you have to bring your IBD and body image difficulties along when you shop for your wedding dress, that is. Learn how Crohn's disease affected Jai...

19 Helmi 201848min

We Are Not Unique With Christy Stone of Crohnie Bologna

We Are Not Unique With Christy Stone of Crohnie Bologna

Are you unique? Do you represent most patients with IBD? Christy Stone of Crohnie Bologna tells the story of her disease journey, how she feels that she's not unique as an inflammatory bowel disease p...

6 Helmi 201838min

2017 Year End Wrap-Up

2017 Year End Wrap-Up

Welcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our str...

4 Tammi 201833min

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