Healthcare Disparities in IBD
About IBD5 Huhti 2021

Healthcare Disparities in IBD

Hey, it's Amber. I want to tell you about my limited podcast series, Healthcare Disparities in IBD.

IBD used to be thought of as a Western disease. Something that happened in developed countries like the United States, Canada, the UK, and Australia. IBD was also thought to mainly affect White people and people of Jewish heritage. However, these demographics are changing, and IBD is now considered a global disease.[1]

A harmful and pervasive misconception is that IBD does not affect people of various ethnic and cultural backgrounds. Minority patients are sometimes told that they can't have an IBD because they are of African, Latinx, Native American, or Asian descent. This leads to a delay in diagnosis and care. In the setting of IBD, which is difficult to treat, this can lead to significant complications that negatively affect every aspect of a person's life.

In this limited series, we explore the ways in which the healthcare system is underserving minority and LGBTQ patients who live with an IBD. We cover the spectrum of this issue including the lack of research in minority populations, how cultural ideas around nutrition affects patients, how patients of color can be better supported, and how legislation can play a role.

As a long-term IBD patient myself, it's my goal to help physicians, industry, and legislators understand how inequalities affect the IBD community and what they should be doing to improve patient care.

Subscribe to Healthcare Disparities in IBD wherever you listen to podcasts.

[1]Molodecky NA, Soon IS, Rabi DM, et al. Increasing incidence and prevalence of the inflammatory bowel diseases with time, based on systematic review. Gastroenterology. 2012;142:46-e30. doi:10.1053/j.gastro.2011.10.001

Credits:

Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca.

Theme music, mix, and sound design is by Cooney Studio.

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Jaksot(200)

Powerful Lessons: How Women Experience Life With IBD Featuring Alicia Aiello of Girls With Guts

Powerful Lessons: How Women Experience Life With IBD Featuring Alicia Aiello of Girls With Guts

Episode transcript and more information at: https://bit.ly/AIBD207 Alicia Aiello, president of Girls With Guts, shares her journey with IBD, which began in childhood. She discusses major surgeries, in...

11 Elo 49min

Hidden Ways IBD Affects You Over a Lifetime With Puja Khanna, MD

Hidden Ways IBD Affects You Over a Lifetime With Puja Khanna, MD

The truth about inflammatory bowel disease (IBD) is that it goes beyond the gut. In this first ever live recording of About IBD, Amber talks with Dr. Puja Khanna from Cedars-Sinai to explore the extra...

21 Heinä 41min

How to Navigate ER Visits and Avoid Fragmented Care With Dr Stephen Lupe

How to Navigate ER Visits and Avoid Fragmented Care With Dr Stephen Lupe

Emergency room visits are a source of stress and can lead to fragmented care. Amber speaks with psychologist Dr Stephen Lupe to learn why inflammatory bowel disease (IBD) patients avoid the ER, the re...

7 Heinä 35min

Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin

Brown Note: Helping People with IBD Find Hope and Support With Andrew Giffin

Amber Tresca talks with Andrew Giffin, a product manager in Toronto who was diagnosed with Crohn's disease at 19 after years of symptoms in high school. Andrew shares his experience navigating three m...

23 Kesä 36min

Insider Secrets to Fearless Travel with IBD

Insider Secrets to Fearless Travel with IBD

Certified travel advisor, business owner, and ulcerative colitis patient Sarah McGovern joins Amber to give tips and tricks on traveling with IBD. Sarah relates her IBD journey, including a rare medic...

9 Kesä 58min

The Powerful Impact of the IBD Community Featuring Katie Neu

The Powerful Impact of the IBD Community Featuring Katie Neu

Episode transcript and more information at: https://bit.ly/AIBD202 Katie Neu and Amber Tresca talk over the results of the IBD Social Circle white paper, "The Power of Community in Inflammatory Bowel ...

19 Touko 42min

Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton

Yoga Therapy for IBD: Why Acceptance is the Best Teacher With Bari Gratton

After a devastating Crohn's disease flare, marketing executive Bari Gratton traded a high-stress career for the healing path of yoga therapy in California. Bari joins Amber Tresca to discuss the "Five...

5 Touko 1h 18min

Is Your Eye Pain Actually an IBD Flare?

Is Your Eye Pain Actually an IBD Flare?

Did you know that inflammatory bowel disease (IBD) isn't only a digestive condition? It can also attack your vision. Your host, Amber J Tresca, breaks down some of the most common eye-related extra-in...

21 Huhti 16min

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