Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik
RealTalk MS13 Loka 2025

Episode 424: I'm a Participant in a Clinical Trial for CAR-T Cell Therapy and MS with Jan Janisch-Hanzlik

Jan Janisch-Hanzlik lives with MS and is a participant in one of the clinical trials evaluating the safety and efficacy of CAR-T cell therapy for MS. Jan is the first person in the world to receive this one-and-done treatment, and this week, she's joining me to share her experience participating in the clinical trial. But you'll be especially interested in hearing how CAR-T cell therapy has impacted Jan's MS.

Open enrollment for people with Medicare and for those who get their health insurance through the ACA healthcare.gov Marketplace begins this week, and we're talking about some of the reasons you want to pay particular attention to your 2026 health insurance options.

As the U.S. federal government shutdown enters its third week, we're reviewing some of the ways that the shutdown may affect someone living with MS.

And we're giving you a reminder about how you can add your voice and share your story of living with MS with the FDA by participating in the Shaping Tomorrow Together initiative.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: A first-hand account of an important clinical trial, open enrollment begins, and how the government shutdown may affect people with MS :22

Open enrollment for Medicare and Marketplace enrolees begins :22

How the federal government shutdown could affect people living with MS 4:29

Your opportunity to tell the FDA what it's like to live with MS 8:57

Jan Janisch-Hanzlik shares her experience participating in a CAR-T cell therapy clinical trial, and how the treatment has impacted her MS 11:28

Share this episode 31:38

Next week's episode 31:57

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/424

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

PARTICIPATE: Take the Shaping Tomorrow Together Survey
https://s.alchemer.com/s3/Perspectives-on-MS

REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA
https://nmss.quorum.us/event/25463

SIGN UP: Become an MS Activist
https://nationalmssociety.org/advocacy

JOIN: The RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

DOWNLOAD: The RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

DOWNLOAD: The RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

REVIEW: Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 424
Guest: Jan Janisch-Hanzlik

Privacy Policy

Jaksot(502)

Special Episode: Dr. Aaron Boster Explains MS Clinical Trials

Special Episode: Dr. Aaron Boster Explains MS Clinical Trials

You're living with MS, and maybe you're thinking about participating in an MS clinical trial. But how do they work? Are they safe? What's the difference between Phase 1, 2, and 3 trials? What are the ...

17 Syys 202533min

Episode 420: A DIY Kit for Improving Your MS Journey with Julie Polisena

Episode 420: A DIY Kit for Improving Your MS Journey with Julie Polisena

Disease-modifying therapies are the cornerstone of MS treatment, but they're not the only piece of the puzzle. Beyond prescription medications, self-care that includes making healthy lifestyle choices...

15 Syys 202534min

Episode 419: A Whole-Person Health Approach to MS Care with Dr. Lynne Shinto

Episode 419: A Whole-Person Health Approach to MS Care with Dr. Lynne Shinto

Some people living with MS adhere to a treatment plan based exclusively on what we might consider traditional medicine. Others opt for alternative treatments. And, still, others take a whole-person he...

8 Syys 202533min

Episode 418: The Importance of Developing a Growth Mindset When You're Living With MS with Dr. Mirian Franco

Episode 418: The Importance of Developing a Growth Mindset When You're Living With MS with Dr. Mirian Franco

Living with MS means living with uncertainty, possible physical disability or cognitive dysfunction, bouts of crushing fatigue, mood changes, and let's not forget the very real irritation of well-mean...

1 Syys 202535min

Episode 417: Music and the Body with Emmy Award-Winning Composer Jeff Beal

Episode 417: Music and the Body with Emmy Award-Winning Composer Jeff Beal

If you've watched the critically acclaimed series, House of Cards, on Netflix, or the OCD detective series, Monk, on the USA Network, you've already listened to some of five-time Emmy award-winning co...

25 Elo 202532min

Episode 416: The Updated McDonald Diagnostic Criteria for MS with Dr. Andrew Solomon

Episode 416: The Updated McDonald Diagnostic Criteria for MS with Dr. Andrew Solomon

Since 2001, clinicians have relied on the McDonald Diagnostic Criteria as the gold standard for diagnosing someone with multiple sclerosis. As science continues to add to our understanding of MS, the ...

18 Elo 202527min

Episode 415: Your Money -- Ways to Earn and Hold Onto More of It When You're Living with MS with Beth Scott and Paula Cole

Episode 415: Your Money -- Ways to Earn and Hold Onto More of It When You're Living with MS with Beth Scott and Paula Cole

Living with MS is expensive. Very expensive. It's estimated that the average cost of living with MS is over $88,000 per year. How, in the midst of financial stress and uncertainty, can you formulate a...

11 Elo 202529min

Episode 414: Finding Peace in the Midst of Uncertainty with Andrea Arzt, LCSW, MSCS

Episode 414: Finding Peace in the Midst of Uncertainty with Andrea Arzt, LCSW, MSCS

Living with MS has always meant living with uncertainty. Left unchecked, that uncertainty can lead to anxiety, which can make your MS symptoms feel worse. This week, Licensed Clinical Social Wor...

4 Elo 202533min

Suosittua kategoriassa Terveys ja hyvinvointi

unicast
voi-hyvin-meditaatiot-2
psykopodiaa-podcast
tiedenaiset-podcast
rss-pitaisko-erota
vakeva-elama-viisaampi-mieli-vahvempi-keho
rss-narsisti
meditaatiot-suomeksi
terapiassa
junnut-pelissa
puhu-muru
aamukahvilla
rss-kuumilla-aalloilla
paritellen
rss-uplevel-by-sonja-hannus
rss-nautinto
rss-pt-paahtio
rss-mighty-finland-podcast
paaasia-podcast
katilon-kahvitunti