All About Von Willebrand Disease: Von Willebrand Disease 101
2026 marks the 100th year anniversary of when Dr Eric Von Willebrand first described the condition in a five year old girl. With this anniversary, we at the Canadian Hemophilia Society feel it's the p...
14 Huhti 19min
Shared Decision-Making
Over the last several years, gene therapy for hemophilia B has become a reality. Some received it through clinical trials, and others received it after marketing authorizations and reimbursement appro...
11 Helmi 27min
Four People Describe Their Experiences with Hemophilia B Gene Therapy
Over the last several years, gene therapy for hemophilia B has become a reality. Some received it through clinical trials. Others received it after marketing authorizations and reimbursement approvals...
11 Helmi 34min
If Gene Therapy for Hemophilia B Were Available Tomorrow, Would You Want to Receive It?
For the last 40 years, we have witnessed tremendous advances in care and treatment for people with hemophilia. Gene therapy has been a dream for most of those 40 years, and the last two to three years...
28 Tammi 24min
Overview of Gene Therapy Approaches
In this first episode of our second podcast series, GENE THERAPY FOR HEMOPHILIA – FROM DREAM TO REALITY, Dr. David Lillicrap describes what gene therapy is in 2026 and hopefully how it works. Dr. Lill...
28 Tammi 28min
![WEBINAR 2: [FR] Un Pas en Arrière, Deux Pas en Avant](https://cdn.podme.com/podcast-images/26204CEE8289BF85FFF6AB893E8D192E_small.jpg)
WEBINAR 2: [FR] Un Pas en Arrière, Deux Pas en Avant
Le webinaire de la Société canadienne de l'hémophilie a abordé la thérapie génique pour les hémophiles. Dr. Jean St. Louis a expliqué les différences entre les injections de facteurs et la thérapie gé...
19 Helmi 20251h 2min
![WEBINAR 2: [EN] Hemophilia Gene Therapy: One Step Back, Two Steps Forward](https://cdn.podme.com/podcast-images/78E986AB394EB2816E08178CC7BC13D8_small.jpg)
WEBINAR 2: [EN] Hemophilia Gene Therapy: One Step Back, Two Steps Forward
The Canadian Hemophilia Society's December 4, 2024 webinar on hemophilia gene therapy featured the latest research and access updates. Dr. Roy Khalifé described how AAV vector gene therapy works in he...
17 Joulu 20241h
DEBATE: If gene therapy for hemophilia B were available in Canada tomorrow, would you want to receive it?
In this podcast, Elizabeth Vansant, Mark Pervan, Murray Milne and Mathieu Jackson, all individuals with severe hemophilia B, are asked to debate the question: “If gene therapy for hemophilia B were av...
5 Kesä 202431min
