Healthwell again open to CF patients
This is our third podcast with Alan Klein, the Chief Development Officer Healthwell. As a reminder Healthwell was paying about $25 million each year for CF co-pays in therapeutics. But because of the ...
19 Helmi 202419min
The extraordinary, Nick Kelly.
(Please consider subscribing to our podcast and rating it. It helps us with promotion. Thank you)What a treat for all of us today. Nicholas Kelly is in the house. I've wanted him on our podcast for a...
12 Helmi 202444min
Karen McEwan and Laura bond over chronic illness
Karen McEwan’s daughter, Elana, is 20 years old. It’s been a complex journey from birth to today. Elana suffers from a rare, incurable disease called Primary Ciliary Dyskinesia (PCD). This is the fi...
5 Helmi 202445min
Two Salty Okes, Rena Barrow's story
Rena Barrow has two kids with CF, Jarrod is 22 and Jahsir is 3 years old. Over the years she’s witnessed a discrepancy in care for people of color. Even after her 22 year old son was diagnosed, docto...
29 Tammi 202440min
Dr. Susanna McColley talks health equity
I am excited that all of you will get to meet Dr. Susanna McColley!!!! I was so impressed with her commitment to CF and her incredible medical and life knowledge. Dr. McColley works to promote equi...
22 Tammi 202454min
CF Woman climbs Kilimanjaro (Caroline Heffernan)
Caroline Heffernan talks to CF families about all sorts of things, employment, family support, housing issues, cross infection, fertility…you name it. Caroline talks all things CF. As someone with CF...
15 Tammi 202444min
Queen Kwong, AKA Carre Callaway -rock n roll and CF
Carre Callaway (Queen Kwong) tours in the U.S., U.K. and wherever her music takes her. Carre ended her tour and was in Los Angeles when we talked with her on this podcast. She talks about how music ...
8 Tammi 202450min
Dr. John Schuen, life at the Grand Rapids CF clinic
Please consider subscribing, rating and commenting on our podcast (Spotify). But you can hear our podcasts anywhere.Dr. John Schuen is the division Chief of Pediatric Aerodigestive Specialties at Hele...
27 Marras 202331min
