Living With Cystic Fibrosis

A black leather jacket, black hoop earrings, black T-shirt and pants. You may visualize a rock star, and Colin Hemez is a rock star of sorts, but he actually works in a white coat, a doctors coat. Yes...

12 Tammi 42min

Breath to Breath Film that celebrates the contributions by Dr. Michael WelshA Conversation with Dr. Michael Welsh: The Science That is Saving LivesIt’s always such a privilege to feature CF icons on t...

5 Tammi 37min

What does it mean to live with cystic fibrosis (CF) in Amish and Mennonite communities, where many families don’t use phones, computers, or even electricity? For some, this means relying on handwritte...

24 Marras 202540min

Delivering Hope across Continents. The why and how Summer Bauder got involved with CF Vests Worldwide.Summer Bauder is a remarkable woman whose story embodies compassion, perseverance, and global impa...

17 Marras 202533min

Jennifer McKinnon is fierce. Doctors said Jennifer wouldn’t live past the age of three.Today, she’s a single mom of twins, an unstoppable advocate who’s raised over a million dollars for cystic fibros...

10 Marras 202527min

The Triple Threat to the Rare Disease Ecosystem — A Conversation with Dr. Wendy ChungSometimes you come across someone whose work changes the way you think about an entire field. That’s exactly what h...

3 Marras 202536min

Our Harvest of Hope Gala was unforgettable—so much love, energy, and sparkle! The theme this year was Diamonds and Denim, and the outfits did not disappoint.Huge thanks to our co-chair, Heather Tramme...

27 Loka 202519min

If you’ve ever been part of the cystic fibrosis community, you’ve probably heard of the sweat chloride test, maybe you’ve even had one yourself. But what does that test really measure, and why does it...

20 Loka 202517min