The Power of Speaking Out about CF with Peter Proimos
When Pete Proimos decided to share his cystic fibrosis story at 40, after decades of silence , it marked a turning point. That decision, guided by his philosophy “Out at 40,” sparked a movement built ...
13 Loka 202543min
The Heart Behind Liam’s Mission: A Mother-Son Journey of Advocacy, Art & Resilience
Turning Diagnosis into Purpose: Deana and Liam’s MissionWhen Liam was diagnosed with cystic fibrosis (10 years ago) at just three weeks old, Deana’s world shifted overnight. What began as one mother’s...
6 Loka 202531min
Heather Ashle, a CF warrior whose love of fantasy is her gift to others
I had the joy of meeting Heather Ashle in person at a Family Night hosted by Children’s Hospital of Michigan a couple months ago. Her energy lit up the room as she spoke—honestly, nervously, and beaut...
29 Syys 202536min
Sick Chick Strong: The Story of Jennifer Dunlea
The unstoppable Jennifer Dunlea is an advocate, a fighter, and an all-around powerhouse. Born with Cystic Fibrosis, Jen has faced more medical battles than most people do in a lifetime, including surv...
22 Syys 202555min
From Patient to Powerhouse: Leslie Baldwin's story
The challenges and triumphs of living with a rare disease. Leslie Baldwin shares her personal journey with Common Variable Immune Deficiency and Ehlers-Danlos Syndrome. You'll hear what fueled her pas...
15 Syys 202533min
Miss America raising hope and awareness for CF
Miss America 2025 Abbie Stockard: A Champion for Kids, Health, and Cystic FibrosisAbbie Stockard, Miss America 2025, joins us to share her incredible journey, from Auburn University nursing student an...
8 Syys 202536min
MRI Fingerprinting: Revolutionizing Care for Rare / Dr. Chris Flask
What if a scan could do more than show you a picture, what if it could tell you a story about what’s happening inside a child’s body, in real time?That’s exactly what Dr. Chris Flask is working to mak...
1 Syys 202536min
Singing, Acting and Advocacy: It's in Julia Rae's DNA!
“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia RaeFrom the moment Julia Rae could speak, she was singing, and from the moment she could dream, she wa...
18 Elo 202539min
