Singing, Acting and Advocacy: It's in Julia Rae's DNA!
“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia RaeFrom the moment Julia Rae could speak, she was singing, and from the moment she could dream, she wa...
18 Elo 202539min
Sophie Holmes: 36 marathons in 36 days
Never Just Surviving: Sophie Holmes on Running 36 Marathons with Cystic FibrosisDespite a schedule packed with training, advocacy, and breaking world records, Sophie Holmes of the U.K. always makes ti...
4 Elo 202536min
Advocacy in Action: From the Front Lines
“It’s an honor to be an advocate,” says Laura Bonnell, founder of The Bonnell Foundation. “We are the government—people are. If we don’t fight for fair laws that help the people they’re meant to serve...
21 Heinä 202552min
The power of yes: it saves lives (Mike Walters and Jason Vandiver)
We have a powerful conversation about dedication, innovation, and impact in the cystic fibrosis community in this podcast. I’m joined by two incredible guests from MVW Nutritionals: Mike Walters and J...
7 Heinä 202547min
How to provide lung health everyday
Substack is where I discovered Dr. MeiLan Han! I was browsing through and was pleasantly surprised to read an article, and learn that she wrote a book called, Breathing Lessons. And to top it off, she...
30 Kesä 202540min
Personalized Mission: The Rosenau Family Foundation story
"Oh, the people you’ll meet, and the places you’ll go..."That classic Dr. Seuss line couldn’t have been more true when I found myself at a rare disease conference, taking with Dr. Gabriel Cohn. A quie...
16 Kesä 202534min
Costco to Connection: Magazine to Mic with Michelle Glogovac
From Costco to Connection: Podcast Advice That Changed EverythingWhen I spotted a feature on podcasting in The Costco Connection, I was excited. When I saw Michelle Glogovac featured? I knew I had to ...
2 Kesä 202547min
Voices of Care: A Live and Unfiltered Conversation
Live from Mix and Mingle Education Day: A Powerful Conversation with CaregiversIn this deeply moving live episode recorded at the Mix and Mingle Education Day, we brought together a powerful group of ...
26 Touko 20251h 16min
