From Patient to Powerhouse: Leslie Baldwin's story
The challenges and triumphs of living with a rare disease. Leslie Baldwin shares her personal journey with Common Variable Immune Deficiency and Ehlers-Danlos Syndrome. You'll hear what fueled her pas...
15 Syys 202533min
Miss America raising hope and awareness for CF
Miss America 2025 Abbie Stockard: A Champion for Kids, Health, and Cystic FibrosisAbbie Stockard, Miss America 2025, joins us to share her incredible journey, from Auburn University nursing student an...
8 Syys 202536min
MRI Fingerprinting: Revolutionizing Care for Rare / Dr. Chris Flask
What if a scan could do more than show you a picture, what if it could tell you a story about what’s happening inside a child’s body, in real time?That’s exactly what Dr. Chris Flask is working to mak...
1 Syys 202536min
Singing, Acting and Advocacy: It's in Julia Rae's DNA!
“I always say that singing and performing was as much a part of my DNA as cystic fibrosis.” Julia RaeFrom the moment Julia Rae could speak, she was singing, and from the moment she could dream, she wa...
18 Elo 202539min
Sophie Holmes: 36 marathons in 36 days
Never Just Surviving: Sophie Holmes on Running 36 Marathons with Cystic FibrosisDespite a schedule packed with training, advocacy, and breaking world records, Sophie Holmes of the U.K. always makes ti...
4 Elo 202536min
Advocacy in Action: From the Front Lines
“It’s an honor to be an advocate,” says Laura Bonnell, founder of The Bonnell Foundation. “We are the government—people are. If we don’t fight for fair laws that help the people they’re meant to serve...
21 Heinä 202552min
The power of yes: it saves lives (Mike Walters and Jason Vandiver)
We have a powerful conversation about dedication, innovation, and impact in the cystic fibrosis community in this podcast. I’m joined by two incredible guests from MVW Nutritionals: Mike Walters and J...
7 Heinä 202547min
How to provide lung health everyday
Substack is where I discovered Dr. MeiLan Han! I was browsing through and was pleasantly surprised to read an article, and learn that she wrote a book called, Breathing Lessons. And to top it off, she...
30 Kesä 202540min
