My journey with Parkinson's

My journey with Parkinson's

I have had a blog called 'Parkies and me - my journey with Parkinson's' for the past four years. Now that I have finished work and have more time, I wanted to add a Podcast to provide more information and interest for my followers. I also hope to get guests on my Podcast on specialist subjects that would be useful to know for both carers and those they support. Look out for interviews regarding important legal decisions that is well worth a look. If you are interested in my Blog, you can find it on www.parkiesandme.com as it follows my journey from diagnosis through my first four years .

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(206)

Is Christmas the same or is it different?

Is Christmas the same or is it different?

Some thoughts on Christmas and how as we change with Parkinson's we may need to find a way to do things differently and still keep the Person with Parkinson's (PWP) a part of the festivities.

22 Joulu 202517min

Forgetting

Forgetting

It seems that most people think that Parkinson's is only a movement disorder condition. However, there are also effects on cognition and memory that are less obvious, but can also be difficult to mana...

20 Joulu 202516min

Moving on - A village or facility, when and why?

Moving on - A village or facility, when and why?

This topic is because of a post on a PD Facebook page where a woman has lost her husband to PD. She now faces her own diagnosis, which was after losing him. Her grief must be immense.

15 Joulu 202510min

Ability vs Disability

Ability vs Disability

The challenge of trying to get people to understand why I don't want to delay anything I want to do.

10 Joulu 20259min

"Am I being offensive?"

"Am I being offensive?"

I have just been made aware that some feel the word "Parkies" is offensive. I don't intend to use this term as applied to a person, but for me Parkies is a separate entity and an unwelcome presence.

3 Joulu 20259min

Priorities - what do you focus on?

Priorities - what do you focus on?

A video popped up on a Facebook Page for people with Parkinson's and those that support them. A husband was talking about how he would have a different priority if he were to have his time again with ...

23 Marras 202513min

"Is lefty doing their job?"

"Is lefty doing their job?"

Some reflections and strategies for assessing how much my left side is compromised compared to my right side and how I am trying to monitor and improve left sided involvement.

21 Marras 20257min

"Forgetting words - Is helping, helping or hindering?"

"Forgetting words - Is helping, helping or hindering?"

Lately I have noticed a bit more trouble with finding words or remembering what I was going to say. Even I don't even know if I want help, so how does my poor husband know?

20 Marras 202513min

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