Narcolepsy Navigators Podcast

Narcolepsy Navigators isn't just another podcast; it's a lifeline, a space where every story shared is a step towards changing the narrative around narcolepsy, idiopathic hypersomnia and Klein-Levin syndrome.


Every episode is a peek into the lives of people navigating these conditions every single day. It's raw, it's real, and it’s about sharing stories that are way too important to miss.


Because when we share, we have the power to change narratives – that’s our mantra, "Share a story to change a story."


Everyday life with these conditions is an unseen odyssey, an intricate dance of challenges that most can't fathom. But we're here to bring those stories into the light, to give a voice to the silent struggles and the victories that often go unnoticed.It's about time the world saw beyond the misconceptions and understood the full impact these conditions have on someone's life.

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S5E7: Sleep health tech consultant and  paediatric sleep consultant for a leading London NHS trust.

S5E7: Sleep health tech consultant and paediatric sleep consultant for a leading London NHS trust.

Leave a review! Dr. Desaline Joseph is a sleep physician, circadian scientist, and health tech consultant. Within the NHS, she helps look after the largest pediatric neurology sleep lab in the UK , ...

4 Marras 50min

S5E6: Pray It Away? Growing Up With Narcolepsy and Being Misunderstood

S5E6: Pray It Away? Growing Up With Narcolepsy and Being Misunderstood

Leave a review! Milah was six when narcolepsy began. She remembers a very energetic, curious child, and then a child who slept so much she spent school days in the medical room. In this episode, host...

29 Loka 52min

S5E5:We Think Outside the Box": Narcolepsy, ADHD, and Being Underestimated

S5E5:We Think Outside the Box": Narcolepsy, ADHD, and Being Underestimated

Leave a review! Kylie Dennis O'Sullivan was diagnosed with narcolepsy type 1 at 12 years old — after years of being told by doctors that she was "just fat and lazy." In this Black History Month UK spe...

6 Loka 54min

S5E4: Why We Just Want to Be Trusted: Narcolepsy, Careers, and Burnout

S5E4: Why We Just Want to Be Trusted: Narcolepsy, Careers, and Burnout

Leave a review! Liz is a speech and language therapist. Christine is a former chartered accountant. Both were diagnosed with narcolepsy type 1 — and both have had to fight, again and again, for accomm...

29 Syys 57min

S5E3: She Falls Asleep, She Can't Stop Ticcing — Meet Two Best Friends

S5E3: She Falls Asleep, She Can't Stop Ticcing — Meet Two Best Friends

Leave a review! Mel has narcolepsy without cataplexy.Jeanna has Tourette syndrome. They met in a Walmart parking lot, went viral for a motorcycle ride the internet still argues about, and somehow bec...

22 Syys 1h 17min

S5E2: How a 16-Year-Old Learned to Stop Masking Narcolepsy

S5E2: How a 16-Year-Old Learned to Stop Masking Narcolepsy

Leave a review! At just 16, Chloe has already lived through what most people spend decades trying to understand about themselves. Diagnosed with narcolepsy type 1 in seventh grade after a mysterious t...

3 Syys 42min

Who Decides What a Medical Breakthrough Is Actually Worth?

Who Decides What a Medical Breakthrough Is Actually Worth?

Leave a review! What is the exact dollar value of staying awake? In this special episode, we dig into a real independent evidence report on Orzeyful (oporexin), a newly FDA-approved drug for narcoleps...

15 Elo 23min

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Advocacy Series: S1E6 Meet the Woman Who Created the World's First IH Nonprofit

Leave a review! It took Michelle Chadwick 20 years to get diagnosed with idiopathic hypersomnia (IH) and when she finally did, she found almost nothing online to help her make sense of it. So she bui...

10 Elo 50min

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