SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(445)

Novartis to Open, at FDA Request, New Trial of Zolgensma for Older Patients

Novartis to Open, at FDA Request, New Trial of Zolgensma for Older Patients

SMA News Today’s multimedia associate, Price Wooldridge, discusses Novartis opening, at FDA request, a new trial of Zolgensma for older patients. Are you interested in learning more about spinal musc...

9 Loka 20207min

How SMA Affects Your Ability to Draw, Treasuring Little Things & Setting Boundaries With Caregivers

How SMA Affects Your Ability to Draw, Treasuring Little Things & Setting Boundaries With Caregivers

Forums Director Kevin Schaefer talks about how SMA has affected his ability to draw, and about treasuring the little things. Recent topics being discussed in the SMA News Today forums include setting...

7 Loka 20205min

#67 - Interview With Maylan Chavez

#67 - Interview With Maylan Chavez

In episode 67, host Kevin Schaefer talks with Maylan Chavez from Miami, Florida. Maylan is an ambassador for the company EyeGaze Inc., which develops eye tracking technology for people with disabiliti...

6 Loka 202037min

Spinraza Leads To Motor Gains Over Time in SMA Type 3 Adults

Spinraza Leads To Motor Gains Over Time in SMA Type 3 Adults

SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza leads to motor gains over time in Spinal Muscular Atrophy (SMA) Type 3 adults, according to a real-life study. DeAnn Ru...

5 Loka 20209min

GridPad Trilogy Communication Device Aids People With Speech And Motor Disorders Who Have SMA

GridPad Trilogy Communication Device Aids People With Speech And Motor Disorders Who Have SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses the GridPad Trilogy communication device, which aids people with speech and motor disorders who have Spinal Muscular Atrophy (SMA). ...

2 Loka 20204min

Kevin Schaefer Talks About How The Past Few Months Have Been And How He’s Adapted to a New Normal

Kevin Schaefer Talks About How The Past Few Months Have Been And How He’s Adapted to a New Normal

Forums Director Kevin Schaefer talks about how the past few months have been for him, and how he’s adapted to a new normal. To learn more about spinal muscular atrophy, visit our website at http://ww...

30 Syys 20203min

Electric Bike Technologies Donates Liberty Trikes To Aid The Mobility Of Children With SMA

Electric Bike Technologies Donates Liberty Trikes To Aid The Mobility Of Children With SMA

SMA News Today’s multimedia associate, Price Wooldridge, discusses the Electric Bike Technologies company donating Liberty Trikes to aid the mobility of children with Spinal Muscular Atrophy (SMA) and...

28 Syys 20205min

AveXis Now Known as Novartis Gene Therapies, Focus of Continuing Work

AveXis Now Known as Novartis Gene Therapies, Focus of Continuing Work

SMA News Today’s multimedia associate, Price Wooldridge, discusses AveXis, now known as Novartis Gene Therapies, focusing on continued work with genetic diseases. Are you interested in learning more ...

25 Syys 20204min

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