#57 - Interview with Heather Kerstetter
In episode 57, host Kevin Schaefer interviews Heather Kerstetter from Philadelphia, Pennsylvania. Heather is a social worker who has SMA Type 3. She talks about growing up with SMA, relationships, and...
5 Touko 202026min
How Taking Part in Adapted Sports Improves Mental Health in Patients With SMA
Forums moderator DeAnn Runge discusses how looking at what makes her life easier now determines what would make her life easier moving forward. SMA News Today’s multimedia associate, Price Wooldridge...
4 Touko 20208min
Discussing The Lack of Muscle Cell Signaling Which is Seen to Kill Motor Neurons in SMA-LED2
SMA News Today’s multimedia associate, Price Wooldridge, discusses the lack of muscle cell signaling which is seen to kill motor neurons in SMA-LED2. SMA News Today’s Senior Director of Multichannel ...
1 Touko 20206min
Telemedicine, Therapy Platforms, Alternative Exercise Routines & Hospital Preparedness Folders
Forums Director Kevin Schaefer reads from his latest column about a new at-home exercise routine he’s developed, using his electric ceiling lift. Also, on our forums over the last week we’ve covered ...
29 Huhti 20205min
Discussing Motor Gains and Safety with Zolgensma’s IT Use in a STRONG Trial
While thinking about how to navigate the Coronavirus situation, forums moderator DeAnn Runge draws parallels to a family game they played. SMA News Today’s multimedia associate, Price Wooldridge, disc...
27 Huhti 20209min
First Patient Treated in The Phase 2/3 Trial, Assessing Higher Doses of Spinraza
Forums Director Kevin Schaefer writes about a new at-home exercise routine he’s developed, using his electric ceiling lift. SMA News Today’s multimedia associate, Price Wooldridge, discusses the firs...
24 Huhti 20206min
Playing Phone Games and Nintendo Switch & Home Exercise Routines and Robotic Assistance Devices
Forums Director Kevin Schaefer talks about how the pop-culture icon Kevin Smith impacted his life, both as a writer and as a person with a disability. Also, there have been some recent discussions on...
22 Huhti 20206min
#56 - SMA Treatments Overview and “Crip Camp” Discussion
In episode 56, hosts Kevin Schaefer and Michael Morale provide an overview of the different SMA treatments, and discuss recent news about the experimental therapy risdiplam. Then in part two, specia...
21 Huhti 202050min
