Discussing Markers of Inflammation Essential for AAV Gene Therapy Use & Thoughts About “Crip Camp"
Forums Director Kevin Schaefer talks about the new Netflix documentary “Crip Camp,” which tells the story of a summer camp in the 50s and 60s for teens with disabilities. SMA News Today’s multimedia...
3 Huhti 20206min
The SMA News Today Forums: a Place to Share Ideas That Will Brighten Spirits During Difficult Times
With a community full of problem solvers the forums have become a place to share ideas that will brighten spirits during these difficult times. Also, forums Director Kevin Schaefer reflects on past...
1 Huhti 20205min
Global Rare Disease Group’s Goal to Have 1,000 New Therapies by 2027 & Benefits of a Service Dog
Forums moderator DeAnn Runge talks about how having a service dog has enhanced her life. SMA News Today’s multimedia associate, Price Wooldridge, discusses a global rare disease group’s goal to have ...
30 Maalis 20208min
Book, Movie and Spotify Recommendations & Study Recommends a Lower Radiation Dose for Spinraza Scans
Forums Director Kevin Schaefer shares some book, movie, and Spotify recommendations for people who are on quarantine. SMA News Today’s multimedia associate, Price Wooldridge, discusses a study which ...
27 Maalis 20208min
Alternative Solutions to Physical Therapy During the COVID-19 Pandemic
Forums Director Kevin Schaefer talks about alternative solutions to physical therapy. As a result of the COVID-19 pandemic, he has to refrain from going to his appointments for now. Also, believe it ...
25 Maalis 20204min
New Test Screens 420 Genes for Markers of SMA & A Message to Friends, Family About COVID-19
Forums moderator DeAnn Runge shares her message to friends and family in regards to COVID-19 and their lives being turned upside down. SMA News Today’s multimedia associate, Price Wooldridge, discuss...
23 Maalis 20205min
Tips For Self-Isolation During the Coronavirus & SYT13 Gene Can Prolong Life in Mice With SMA
Forums Director Kevin Schaefer shares some of his tips for self-isolation during the Coronavirus (COVID-19) outbreak. SMA News Today’s multimedia associate, Price Wooldridge, discusses how the synapt...
20 Maalis 20206min
Coronavirus (COVID-19): Precautions, Protecting Yourself and Staying Productive During Lockdown
One of the main topics of conversation over on the forums is COVID-19. Posted are links to resources and tips on staying productive during lockdown. DeAnn also discusses where to find the latest SMA...
18 Maalis 20205min
