SMA News & Perspectives

SMA News & Perspectives

Daily, digital coverage of the latest SMA news and perspectives.

Tämä podcast on lisätty Podme-palveluun avoimen RSS-syötteen kautta eikä se ole Podmen omaa tuotantoa. Siksi podcastin jaksot saattavat sisältää mainontaa.

Jaksot(445)

The SMA News Today Forums: a Place to Share Ideas That Will Brighten Spirits During Difficult Times

The SMA News Today Forums: a Place to Share Ideas That Will Brighten Spirits During Difficult Times

With a community full of problem solvers the forums have become a place to share ideas that will brighten spirits during these difficult times. Also, forums Director Kevin Schaefer reflects on past...

1 Huhti 20205min

Global Rare Disease Group’s Goal to Have 1,000 New Therapies by 2027 & Benefits of a Service Dog

Global Rare Disease Group’s Goal to Have 1,000 New Therapies by 2027 & Benefits of a Service Dog

Forums moderator DeAnn Runge talks about how having a service dog has enhanced her life. SMA News Today’s multimedia associate, Price Wooldridge, discusses a global rare disease group’s goal to have ...

30 Maalis 20208min

Book, Movie and Spotify Recommendations & Study Recommends a Lower Radiation Dose for Spinraza Scans

Book, Movie and Spotify Recommendations & Study Recommends a Lower Radiation Dose for Spinraza Scans

Forums Director Kevin Schaefer shares some book, movie, and Spotify recommendations for people who are on quarantine. SMA News Today’s multimedia associate, Price Wooldridge, discusses a study which ...

27 Maalis 20208min

Alternative Solutions to Physical Therapy During the COVID-19 Pandemic

Alternative Solutions to Physical Therapy During the COVID-19 Pandemic

Forums Director Kevin Schaefer talks about alternative solutions to physical therapy. As a result of the COVID-19 pandemic, he has to refrain from going to his appointments for now. Also, believe it ...

25 Maalis 20204min

New Test Screens 420 Genes for Markers of SMA & A Message to Friends, Family About COVID-19

New Test Screens 420 Genes for Markers of SMA & A Message to Friends, Family About COVID-19

Forums moderator DeAnn Runge shares her message to friends and family in regards to COVID-19 and their lives being turned upside down. SMA News Today’s multimedia associate, Price Wooldridge, discuss...

23 Maalis 20205min

Tips For Self-Isolation During the Coronavirus & SYT13 Gene Can Prolong Life in Mice With SMA

Tips For Self-Isolation During the Coronavirus & SYT13 Gene Can Prolong Life in Mice With SMA

Forums Director Kevin Schaefer shares some of his tips for self-isolation during the Coronavirus (COVID-19) outbreak. SMA News Today’s multimedia associate, Price Wooldridge, discusses how the synapt...

20 Maalis 20206min

Coronavirus (COVID-19): Precautions, Protecting Yourself and Staying Productive During Lockdown

Coronavirus (COVID-19): Precautions, Protecting Yourself and Staying Productive During Lockdown

One of the main topics of conversation over on the forums is COVID-19. Posted are links to resources and tips on staying productive during lockdown. DeAnn also discusses where to find the latest SMA...

18 Maalis 20205min

#54 - Roundtable About Corona Virus

#54 - Roundtable About Corona Virus

In episode 54, Michael and I discuss the global outbreak of Coronavirus (COVID-19). We share our tips for how others in the SMA community can best protect themselves, as well as their caregivers. Plea...

17 Maalis 202018min

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