#119: Chaz Hayden Discusses His Debut Novel
In episode 119, host Kevin Schaefer talks with Chaz Hayden, a young adult author with SMA. Chaz’s debut novel, The First Thing About You, tells the story of a 15-year-old boy with SMA named Harris who...
6 Joulu 202241min
#117: Delphine Andrews and Kevin Davis, Interabled Couple
In episode 117, host Kevin Schaefer talks with Delphine Andrews and Kevin Davis from North Carolina. Delphine has SMA and she began dating Kevin in early 2020. They discuss their careers, daily lives,...
1 Joulu 202253min
#118: Aging and SMA
In episode 118, host Kevin Schaefer talks with work colleagues Michael Morale and DeAnn Runge about aging and SMA. They start by discussing Scholar Rock’s experimental therapy, Apitegromab, and go ove...
22 Marras 202252min
#116: Shaniqua Granby, Law Professional With SMA
In episode 116, host Kevin Schaefer talks with Shaniqua Granby from Virginia Beach, Virginia. Shaniqua is an equal employment opportunity specialist, and she has SMA Type 3. She discusses going to law...
18 Loka 202237min
#115: Jose Flores, Author and Motivational Speaker
In episode 115, host Kevin Schaefer talks with Jose Flores from Miami, Florida. Jose is a bestselling author and motivational speaker who lives with SMA Type 3. He discusses his journey toward entrepr...
4 Loka 202250min
#114: Daniele Johnson, SMA Mom and Advocate
In episode 114, host Kevin Schaefer talks with Daniele Johnson from Evansville, Indiana. Daniele and her husband’s youngest son, Anthony, has SMA type 0. She talks about her son’s diagnosis, pursuing ...
20 Syys 202230min
#113: Dustin Swafford, Power Soccer Coach and Player
In episode 113, host Kevin Schaefer talks with Dustin Swafford from Georgia. Dustin has been playing and coaching a power soccer team for years, and his team recently won the national championship. He...
6 Syys 202235min
#112: Lexi Villa, Social Media Influencer and Disability Advocate
In episode 112, host Kevin Schaefer talks with Lexi Villa from Torrance, California. Lexi works in retail and shares her life with SMA on social media. She discusses moving away from home at a young a...
16 Elo 202256min
