#103: Clinical Trials and Advocacy with Stephen Mikita and Arya Singh
In episode 103, host Kevin Schaefer talks with Stephen Mikita and Arya Singh, two individuals with SMA who have years of experience with clinical trials. Stephen, 66, was an Assistant Attorney General...
5 Huhti 202242min
#102: Interview with Amber-Joi Watkins, SMA Mom and Advocate
In this episode, host Kevin Schaefer talks to Amber-Joi Watkins, an SMA mom and advocate. Amber-Joi talks about raising her daughter, Celine, and becoming part of the SMA community. She also discusses...
15 Maalis 202231min
Using Ultrasound May Help in SBMA Diagnosis & Dealing With Hospital Stays
SMA News Today’s multimedia associate, Price Wooldridge, discusses how men with spinal and bulbar muscular atrophy (SBMA) had abnormally small nerves in the limbs, especially the arms, as measured by ...
2 Maalis 20228min
#101: Interview with John Milligan, Asuragen Scientist & SMA Testing Expert
In this episode, host Kevin Schaefer talks with John Milligan from Austin, Texas. John is a Senior Manager in RND at Asuragen, a biotechnology company. They chat about the state of SMA testing, newbor...
1 Maalis 202228min
SMA Screening Now Available to 87% of Newborns in US & Olympics Lacked Disability Representation
SMA News Today’s multimedia associate, Price Wooldridge, discusses how screening for spinal muscular atrophy is now available to 87% of all newborns in the United States, according to Cure SMA. After...
23 Helmi 20227min
Evrysdi for Infants Under 2 Months Old Given FDA Priority Review & Adapting to a New Wheelchair
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the FDA is reviewing a request that the use of Evrysdi, an oral and at-home SMA treatment, be extended to pre-symptomatic babies....
16 Helmi 202210min
#100: Interview with Gabrielle Runyon, College Student with SMA and Disability Advocate
In episode 100, host Kevin Schaefer talks with Gabrielle Runyon (she/her) from Louisville, Kentucky. Gabrielle is a sophomore at the University of Louisville, studying psychology. She talks about grow...
15 Helmi 202238min
#99: SMA and Motherhood
In episode 99, host Kevin Schaefer talks with two mothers from the SMA community. Trudy Citovic lives in Oregon, and her daughter Alina has SMA. As an advocate for newborn screenings, she talks abou...
1 Helmi 20221h 2min
