TSC Talks!
TSC TALKS 2.0. Inspired by the condition Tuberous Sclerosis Complex. Providing digital audio & video content and products designed to educate, illuminate, support and advocate "off the grid" alternative and holistic options for marginalized populations. Providing a forum for communication, collaboration, resources and opportunity. Drawing from lived and learned experience All with the goal of coming together to affect change, bridge gaps and empower as we come together to better understand each other's predicament and validate the need for access, affordability that often keep those with chronic, life threatening conditions from exploring options. Options that CAN open the doors of perception to understanding our exceptional variability as human beings and the “one size fits all” aspects of traditional medicine that are not conducive to bio-psycho-social health, stability and longevity. Come join us as we dig deep into issues and concepts that need to be given some thought and discussion in order to truly “walk a mile” in another’s shoes!

Become a supporter of this podcast: https://www.spreaker.com/podcast/tsc-talks--1666046/support.

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TSC Talks; "Bring on the Rain", Part 3- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom

TSC Talks; "Bring on the Rain", Part 3- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom

In this final segment, Julie goes into detail discussing her son's progress once he became eligible through a waiver funded by the Louisiana Department of Health’s Office for Citizens with Development...

24 Touko 201932min

TSC Talks; "Bring on the Rain", Part 2- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom

TSC Talks; "Bring on the Rain", Part 2- Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom

In Part 2 of this 3 part episode, Julie Comeaux gives us more details on the events that happened with her son leading up to filing a systemic complaint as well as having one filed against her. This u...

11 Touko 201927min

TSC Talks; "Bring on the Rain"; Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom

TSC Talks; "Bring on the Rain"; Affecting Systemic Change, with Julie Comeaux, Education Parent Mentor, Advocate & TSC Mom

In Part 1 of this series, Julie Comeaux begins to give an inside look at her experiences in the education system in Louisiana with her son that has TSC. She has attended multiple parent training event...

8 Touko 201946min

TSC Talks; The Tidal Waves of TSC; Part 2 Strength Under Pressure, with Chelsea Holman

TSC Talks; The Tidal Waves of TSC; Part 2 Strength Under Pressure, with Chelsea Holman

Continuing our conversation from Part 1, Chelsea talks a bit about difficulties with the local school system, coping with stigma, mental health issues, seeking support, finding the moments and living ...

29 Huhti 201932min

TSC Talks; The Tidal Waves of TSC; Taking it A Day at A Time & Making it Work, Part 1 with TSC Mom, Chelsea Holman

TSC Talks; The Tidal Waves of TSC; Taking it A Day at A Time & Making it Work, Part 1 with TSC Mom, Chelsea Holman

My guest, Chelsea Holman, is a TSC Mom from Nevada. Impacted personally by TSC, having a son, and various other family members affected with the diagnosis, Chelsea gives a raw look at receiving a diag...

28 Huhti 201933min

TSC Talks; The Therapy of Theater, "Skuby Talk", & Comedy for a Cure with Alex Skuby, Actor/Podcaster

TSC Talks; The Therapy of Theater, "Skuby Talk", & Comedy for a Cure with Alex Skuby, Actor/Podcaster

Alex Skuby, Actor, Co Hosted the recent Comedy for A Cure Fundraiser for the TS Alliance and was kind enough to come on TSC Talks, share some laughs and give me the low down on life. He shares from hi...

18 Huhti 201935min

TSC Talks; "No Young Adult with TSC Fights Alone", with TS Alliance Junior Leader & Young Adult Advocate, Brianna Johnson

TSC Talks; "No Young Adult with TSC Fights Alone", with TS Alliance Junior Leader & Young Adult Advocate, Brianna Johnson

My guest Briana Johnson is 21 years old and lives in Scottsdale Arizona. She'll be graduating this month from Grand Canyon University with a bachelors degree in marketing. Over the past few months, ...

13 Huhti 201926min

TSC Talks! Living It; Giving Everything But Up! Lauren Shores Shillinger, TSC Mom, Advocate & a TS Alliance Volunteer of the Year

TSC Talks! Living It; Giving Everything But Up! Lauren Shores Shillinger, TSC Mom, Advocate & a TS Alliance Volunteer of the Year

Lauren Shores Shillinger was a dynamic, enthusiastic guest, ready to share her lived experience as a TSC Mom, Advocate and Chair of TS Alliance of Maryland. She was recently named one of four recipien...

6 Huhti 20191h 1min

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