TSC TALKS, Episode 21; A Moment with MaryEllen Lacy, 22 year old with TSC; Update on Shared Living Sitch, New Program, ETC
In this brief episode, MaryEllen Lacy, 22, an adult living with TSC, gives me an update on her current living situation after moving out last April to Shared Living. I recently interviewed her caregi...
17 Joulu 201813min
TSC TALKS, Episode 20; "Strange Things", aka Infantile Spasms in TSC with Tarra Hassin. A Primer on Perseverance, Perception and Acceptance
Tarra Hassin gives us an inside look at her experience with her son Colin's TSC diagnosis at 10 weeks old with seizures and how she started to notice "strange things" happening. and that led to IS dia...
9 Joulu 201851min
TSC TALKS, Episode 19; Shannon Grandia, TSC Mom, Spouse, Advocate & Teacher; Finding Joy on the TSC Path
A discussion with Shannon Grandia, wife, mother, first-grade teacher, TS Alliance Volunteer, and Advocate! She shares her experience over the last 19 years with her children, Rylee, Jake and Luke, all...
3 Joulu 201847min
TSC TALKS Episode 18, Claire Despres, Shared Living Provider for MaryEllen Lacy, young adult with TSC
A day in the life of Shared Living Provider, Claire Despres. We discuss the ins and outs of shared living; the program itself, the process of finding a client, the role of a good case management tea...
29 Marras 201832min
TSC TALKS, Episode 17; Going Local! Finding the Middle Ground in Special Education with Stacey Jackson
In this episode, I go local in this discussion of special education with past school committee member and experienced special needs mother, Stacey Jackson. We go in-depth on Stacey's hands-on experie...
15 Marras 201857min
TSC TALKS. Episode 16; Hope WINS! Meghan Wilson, Cameran & TeamCamBam
HOPE WINS. In the words of new TSC Mom Meghan Wilson, "Live the Moments". Meghan talks about her baby Cameran's diagnosis at 2 months, getting seizure control, ketogenic diet, the MGH TS Clinic, and f...
7 Marras 201830min
TSC TALKS: Episode 15, Jill Talks: Team TSC and the big RACE! with guest host, Dorina Leslie
Previous podcast guest, Dorina Leslie, Interviews host Jill Woodworth on her experience with TSC in her children, impact personally and how this led to her involvement with Marine Corp Marathon TS All...
23 Loka 201829min
TSC Talks: Episode 14, Kristina, Occupational Therapist, "The Importance of Hope in Early Intervention Services"
Kristina Hansson, Occupational Therapist of 25 years discusses her motivation for becoming an OT, Importance of Early Intervention programs, the process of requesting services, her diagnosis of Neurof...
17 Loka 201820min
