preparation is the better part of valor
I AM MADELINE1 Des 2025

preparation is the better part of valor

to borrow part of a quote and replace discretion with preparation, hence preparation is the better part of valor when it comes to myalgic encephalomyelitis deterioration. So today I talk about some of those strategies and the pros and cons of the energy spent trying to figure them out at at the best price to factor in running out of money which is the whole reason I have to do the strategies


also where I update you on what's been going on since the last couple of episodes I melted down.


I mentioned the petition so here's the link https://bit.ly/Marcia_petition


I also mentioned a recent GoFundMe update so here's that link https://gofund.me/6d981312

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Episoder(158)

medical instruction REST

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min

ADVOCACY

ADVOCACY

where I talk about layers and kinds of advocacy from medical to bureaucratic to systemic. personal advocacy and larger disability and disease advocacy. And also different kinds of advocacy and what I ...

25 Jul 48min

Music Magic

Music Magic

alive in the field episode from the music festival I've been talking about. I did manage to make it well hopefully I can do the whole thing. at least I'm here mid-afternoon on Saturday so I will enjoy...

18 Jul 8min

I'm scared

I'm scared

where I talk about an aha moment around why not being able to pull my brain together as I describe in the previous episode freaked me out so much. Because if I can't be eloquent then that will be a de...

14 Jul 5min

blArgh

blArgh

The perils of tired brain and trying to be at magical Ted talk in a volunteer situation(see my project hail Mary episode). le sigh

14 Jul 4min

my Project Hail Mary

my Project Hail Mary

where I talk about my lived experience life and death against seeming insurmountable odds resonance with the movie Project Hail Mary some of the things I referenced today are the latest GoFundMe updat...

11 Jul 13min

DOCUMENT done! woohoo

DOCUMENT done! woohoo

finally! The document is done. sent to ministers and ministries here in BC and to the same media we sent the press release for the petition presentation. obviously it was sent along with the petition ...

3 Jul 12min

*the DOCUMENT*

*the DOCUMENT*

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking ev...

20 Jun 32min

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