My CanaryUK op-ed is out
I AM MADELINE19 Des 2025

My CanaryUK op-ed is out

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)


If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing

Insta https://www.instagram.com/p/DSc6ciGiQv0/?igsh=MXFnemtrd3Y3eGx6eA==

Fb https://www.facebook.com/share/p/1AKdjYyQ72/

Twitter https://x.com/i/status/2002061384209867072

Blue sky https://bsky.app/profile/madelinenerd.bsky.social/post/3mae64ynmms2l


It getting published so close to Christmas means having it shared by people like you is extra extra important for I'm not sure how much of an impact it has on the petition and the GoFundMe(which currently runs out mid-January which means I would have to stop life maintaining supports. that's kind of eating my brain).


For anyone you are sending it to who doesn't know about my situation, the op-ed does link to 2 articles that this publication wrote last December about my situation which gives a pretty good sense of what's the what. and of course That also means I've been verified six ways to Sunday about these things


I don't have the brain power to read this last op-ed edit, so I'll be interested hearing what you think


I got to have a flyby encounter with David Eby yesterday, who's my MLA, and once again ask for a constituency appointment which I've been begging for for the better part of almost 2 years now. Cuz that's the only way I get proper supports and can stop begging for my life on the internet🤞


I did tell him about the petition hoping that might speed up the constituency appointment process https://bit.ly/Marcia_petition . Also I did my best in a crowded loud environment to express that the petition encapsulates easy solutions. I didn't have the rain power to say how much they save the system money both directly in people like me not slamming into the ministry of Health but also indirectly by the The 36%-37% ( https://academic.oup.com/ofid/advance-article/doi/10.1093/ofid/ofaf533/8244677?login=false )of the population getting long covid having correct instruction and support so they don't unnecessarily become disabled get removed from the tax base.


Oh well. Hopefully I'll get a chance to say it in person out of constituency appointment.


Warmest holiday wishes

Marcia AKA Madeline

#MyalgicE #meaction #christmas #longcovid #christmastime

Episoder(140)

under pressure

under pressure

I was trying to figure out what to call this and I think that David Bowie Queen song under pressure pretty much describes it I think. So I'm continuing to try to document the insanity of the measure o...

24 Mar 38min

Sick Times republish of my op-ed!

Sick Times republish of my op-ed!

A quick update as the sick times have republished my op-ed. I'm a bit addle brained so you're not getting a lot much in the way of intelligence but it does document some of the brain fog issues Sick t...

20 Mar 6min

Light In Darkness

Light In Darkness

today I don't just document the grinding difficulty but my memory banks pulled up some really nice light and darkness times from when I was little and I also talk about some really nice things from so...

18 Mar 20min

Leadership And Power Musings

Leadership And Power Musings

where I talk about how I feel about My power and the leadership roles I have been in and the leadership roles I may be in in the near future depending on how the email campaign goes speaking of which ...

16 Mar 22min

pt 6: Ides of March squish squash

pt 6: Ides of March squish squash

where I talk about how rest day is rarely just the rest day because all the stuff I've been compartmentalizing comes out and wants to be processed. which is not very restful. having my body not moving...

16 Mar 13min

pt5: pi Day squish squash continues

pt5: pi Day squish squash continues

It's pi day. unfortunately I don't have any actual pie to celebrate with. But I hope you're having some nerdy fun. For me it's whimsy as I'm still experiencing squish squash. Still documenting what it...

15 Mar 15min

pt4: Friday the 13th squish squashed, The hits keep coming

pt4: Friday the 13th squish squashed, The hits keep coming

things that got even worse today. So much so that I called a friend, had a meltdown, which I talk about in the episode, and decided that I am the universe's chew toy. yeah, a little dramatic for sure....

14 Mar 30min

pt3: squish squash brick wall

pt3: squish squash brick wall

In which I talk about how I only started to feel better when I realized how my pink hoping strategies were interfering with me understanding that being on the mobility scooter today or trying to get i...

10 Mar 19min

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