My CanaryUK op-ed is out
I AM MADELINE19 Des 2025

My CanaryUK op-ed is out

My op-ed is out! https://www.thecanary.co/opinion/2025/12/19/me-void/ (Linkbio)


If you could share the op-ed everywhere you can that would be amazing. Posts I've made for easy sharing

Insta https://www.instagram.com/p/DSc6ciGiQv0/?igsh=MXFnemtrd3Y3eGx6eA==

Fb https://www.facebook.com/share/p/1AKdjYyQ72/

Twitter https://x.com/i/status/2002061384209867072

Blue sky https://bsky.app/profile/madelinenerd.bsky.social/post/3mae64ynmms2l


It getting published so close to Christmas means having it shared by people like you is extra extra important for I'm not sure how much of an impact it has on the petition and the GoFundMe(which currently runs out mid-January which means I would have to stop life maintaining supports. that's kind of eating my brain).


For anyone you are sending it to who doesn't know about my situation, the op-ed does link to 2 articles that this publication wrote last December about my situation which gives a pretty good sense of what's the what. and of course That also means I've been verified six ways to Sunday about these things


I don't have the brain power to read this last op-ed edit, so I'll be interested hearing what you think


I got to have a flyby encounter with David Eby yesterday, who's my MLA, and once again ask for a constituency appointment which I've been begging for for the better part of almost 2 years now. Cuz that's the only way I get proper supports and can stop begging for my life on the internet🤞


I did tell him about the petition hoping that might speed up the constituency appointment process https://bit.ly/Marcia_petition . Also I did my best in a crowded loud environment to express that the petition encapsulates easy solutions. I didn't have the rain power to say how much they save the system money both directly in people like me not slamming into the ministry of Health but also indirectly by the The 36%-37% ( https://academic.oup.com/ofid/advance-article/doi/10.1093/ofid/ofaf533/8244677?login=false )of the population getting long covid having correct instruction and support so they don't unnecessarily become disabled get removed from the tax base.


Oh well. Hopefully I'll get a chance to say it in person out of constituency appointment.


Warmest holiday wishes

Marcia AKA Madeline

#MyalgicE #meaction #christmas #longcovid #christmastime

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Episoder(158)

medical instruction REST

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min

ADVOCACY

ADVOCACY

where I talk about layers and kinds of advocacy from medical to bureaucratic to systemic. personal advocacy and larger disability and disease advocacy. And also different kinds of advocacy and what I ...

25 Jul 48min

Music Magic

Music Magic

alive in the field episode from the music festival I've been talking about. I did manage to make it well hopefully I can do the whole thing. at least I'm here mid-afternoon on Saturday so I will enjoy...

18 Jul 8min

I'm scared

I'm scared

where I talk about an aha moment around why not being able to pull my brain together as I describe in the previous episode freaked me out so much. Because if I can't be eloquent then that will be a de...

14 Jul 5min

blArgh

blArgh

The perils of tired brain and trying to be at magical Ted talk in a volunteer situation(see my project hail Mary episode). le sigh

14 Jul 4min

my Project Hail Mary

my Project Hail Mary

where I talk about my lived experience life and death against seeming insurmountable odds resonance with the movie Project Hail Mary some of the things I referenced today are the latest GoFundMe updat...

11 Jul 13min

DOCUMENT done! woohoo

DOCUMENT done! woohoo

finally! The document is done. sent to ministers and ministries here in BC and to the same media we sent the press release for the petition presentation. obviously it was sent along with the petition ...

3 Jul 12min

*the DOCUMENT*

*the DOCUMENT*

In the home stretch on this document to go with the petitions to the BC ministers of health, social development of poverty reduction and finance as well as the premier's office But boy is it taking ev...

20 Jun 32min

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