Let’s talk about epilepsy14 Okt 2025

Hear Her Voice – Exploring the impact of epilepsy on women and girls (Audio only)

In our first LIVE episode, renowned broadcaster, Edith Bowman hosts a powerful panel discussion with Netflix and Hollyoaks actor Ellie Henry, Fashion PR Hum Fleming, and student Mariam Hussain who share their personal stories of diagnosis, school, work, memory loss, and the importance of support networks.

We also explore the impact of epilepsy on mothers as BBC F1 host Jenny Gow, Dr Laura Cunnane and Kelly Norford open up about the challenges and resilience of families navigating epilepsy with their child. Dr. Tejal Mitchell, consultant neurologist, joins to answer questions and discuss the unique challenges facing women and girls, including hormonal changes, medication, and the transition from paediatric to adult care.

Hear Her Voice centres the voices of women and girls living with epilepsy and is an example of how powerful a conversation can be.

PLEASE NOTE: Epilepsy is a highly individualised condition, and each person’s experience can vary significantly. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare provider for personalised medical advice and support tailored to your specific needs.

⚠️ Please proceed with care: This film discusses SUDEP (Sudden Unexpected Death in Epilepsy) and may be triggering for some viewers.

For more information search 'SUDEP' on our website.

If you’re sad, worried, or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Chapters: 0:00 Introduction and Overview 2:00 Living with Epilepsy: Ellie’s Story 7:30 School, Exams, and Advocacy: Maryam’s Experience 15:00 Memory, Support, and Openness: Hum’s Journey 29:00 Mothers’ Panel: Family Life and Resilience 50:00 Coping with Loss and Finding Community: Laura’s Story 61:00 Expert Q&A with Dr. Tejal Mitchell 79:00 Audience Questions and Reflections 89:30 Closing Thoughts and Support

Useful Links:

Young Epilepsy website: https://www.youngepilepsy.org.uk/

Information about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy

Seizure first aid poster: https://www.youngepilepsy.org.uk/sites/default/files/2025-02/SeizureFirstAidPosterPrinterFriendly.pdf

Youth Voice Network: https://www.youngepilepsy.org.uk/youth-voice-network/

Young Epilepsy Youth Support Services: https://www.youngepilepsy.org.uk/what-we-do/voice-support/support-inclusion

Social Media:

X: https://x.com/youngepilepsy/

Facebook: http://facebook.com/YoungEpilepsy

Instagram: https://www.instagram.com/youngepilepsy/

YouTube: https://www.youtube.com/user/youngepilepsy

LinkedIn: https://www.linkedin.com/company/young-epilepsy/

TikTok: https://www.tiktok.com/@youngepilepsy/

Contact: communications@youngepilepsy.org.uk

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Episoder(14)

Epilepsy and Us: Sibling Stories

In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the famil...

13 Mai 1h 12min

Introduction to: Harder to Manage Epilepsy

In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’...

22 Apr 44min

Can I drive with epilepsy?

In this episode, we talk about epilepsy and driving, and what it means for young people. Host Ellie is joined by Chris McCarthy and Elina from Young Epilepsy’s Youth Voice Network to explore the reali...

1 Apr 45min

What I wish I knew when I was diagnosed (Audio only)

We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about th...

3 Des 202523min

Diagnosis and Emerging Technologies (Audio only)

We dive into the emotional journey of getting an epilepsy diagnosis. Host Kirsten McHale chats with Professor Mark Richardson, Dr Colin Dunkley, and Spencer from the Youth Voice Network. They talk abo...

19 Nov 20251h 17min

A parent's journey with childhood epilepsy - Sarah and Lexi (Audio only)

This episode explores the emotional journey of getting an epilepsy diagnosis for children and young people. Host Kirsten McHale speaks with Sarah, who shares her personal experience as a parent naviga...

5 Nov 202532min

Joe's seizures (Audio only)

In this episode, we break down what seizures are and what they can look like. With help from healthcare professionals and real-life stories, we explain the different types of seizures in a way that’s ...

8 Okt 202544min