Let’s talk about epilepsy3 Des 2025

What I wish I knew when I was diagnosed (Audio only)

We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about the moment of diagnosis, the fears and misconceptions they faced, and the journey to independence.

They discuss coping strategies, the importance of community, and how to break down stigma. This episode is packed with real-life experiences, practical tips, and hope for anyone navigating their own epilepsy journey.

IMPORTANT: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly.

The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs.

If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout

Useful links:

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TikTok: / youngepilepsy

Contact: communications@youngepilepsy.org.uk

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Episoder(18)

Venting

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