Self-Empowerment & Polycythemia Vera

Self-Empowerment & Polycythemia Vera

On this episode of the PV Pod: Stories from the Marrow, Kay and Josh welcome Tracy Rode, CEO of the Patient Empowerment Network and a 15-year cancer survivor. Tracy shares her insights on self-advocacy, the importance of credible information, and how to navigate the challenges of living with a rare cancer like polycythemia vera. Listeners will learn practical tips for preparing for doctor appointments, finding support, and empowering themselves throughout their PV journey.

Transparency Statement:

The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.

The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.

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Episoder(24)

Essential Thrombocythemia 101

Essential Thrombocythemia 101

In this episode of The MPN Pod, hosts Kay and Josh sit down with Dr. Tony Hunter, an MPN specialist and associate professor at Emory University, for a comprehensive ET 101. Dr. Hunter breaks down what...

3 Jun 33min

Catching up with Gary Linehan: Living with PV and his Next Big Adventure

Catching up with Gary Linehan: Living with PV and his Next Big Adventure

On this episode of the MPN Pod, hosts Kay and Josh welcome back fan-favorite guest Gary Linehan, a 56-year-old educator and avid hiker living with polycythemia vera, for an update on his journey since...

8 Apr 21min

A Young Patient's Journey: Balancing Career and Polycythemia Vera

A Young Patient's Journey: Balancing Career and Polycythemia Vera

In this season three premiere of the MPN Pod: Stories from the Marrow, hosts Kay Vermeil and Josh Bragg interview Dr. Tyler Parsons, a postdoctoral researcher at Washington University who studies myel...

4 Mar 25min

A 2025 Year in Review for Polycythemia Vera

A 2025 Year in Review for Polycythemia Vera

The Season 2 finale of The PV Pod: Stories from the Marrow takes listeners through a thoughtful year-end review, highlighting the most impactful insights shared by patients, caregivers, clinicians, an...

21 Jan 25min

Managing Your PV and Mental Health

Managing Your PV and Mental Health

On this episode of the PV Pod: Stories from the Marrow, hosts Kay and Josh are joined by Dr. Al Freedman, a psychologist and rare disease advocate, to discuss the mental health challenges faced by peo...

24 Sep 202529min

Self Advocacy in Polycythemia Vera: A Patient's Perspective

Self Advocacy in Polycythemia Vera: A Patient's Perspective

On this episode of the PV Pod, hosts Kay and Josh discuss the importance of self-advocacy for those living with polycythemia vera (PV). They speak with Susan Brooks about her diagnosis journey, her ex...

20 Aug 202524min

Shared Decision Making in Polycythemia Vera

Shared Decision Making in Polycythemia Vera

On this episode of the PV Pod, Josh and Kay discuss the critical importance of shared decision making in the treatment of polycythemia vera (PV). They are joined by Dr. Lucia Masarova from MD Anderson...

16 Jul 202529min

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