Ep. 32 - Lindsay

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV!

Visit patientpov.ca for episodes, updates, resources, blog, and freebies!!

Somedays is a period pain relief company that I have absolutely fell in love with!!

For a 15% off discount code go to: https://somedays.com/JESS_AND_ELDA or use JESS_AND_ELDA at check out!

Today we chatted with Lindsay (insta: spoonfuloflindsay) who shares her story with small fiber neuropathy, POTS, migraine, ME/CFS, and more!

Notes:

• Small Fiber Neuropathy: Lindsay describes what small fiber neuropathy is and how it affects her daily life as a teacher through numbness, tingling and pain.

• Daily Challenges: The most challenging impacts on Lindsay's daily life from her conditions like brain fog and fatigue.

• Coping Strategies: Ways that Lindsay advocates for herself and finds accommodations like reduced hours and mobility assistance.

• Managing Chronic Illness: Discussing strategies for navigating the healthcare system and advocating for oneself when seeking diagnosis.

• Give yourself permission to rest

• Self-Care Strategies: Deep breathing exercises and meditation apps used to manage fatigue and support restorative sleep and recommends the Yoga Nidra meditation app.

• Don’t be afraid of firing unsupportive doctors and finding one with a good bedside manner (you can look at their online profile and reviews).

• Asking doctors that are dismissive to document the refusal of the request you made (ex: tests or referrals) in medical notes. This will be proof if you get results back in the future and sometimes they change their mind once documented