Amy Rose - Misdiagnosed Lyme Disease, Brain Inflammation, and the Fight for Lyme Awareness

Amy Rose - Misdiagnosed Lyme Disease, Brain Inflammation, and the Fight for Lyme Awareness

What happens when Lyme disease is repeatedly dismissed even when the symptoms are clear?

In this episode of Integrative Lyme Solutions, Dr. K speaks with Lyme advocate Amy Rose, who spent more than eight years searching for answers after being infected by a tick bite in 2008. Within days she developed severe flu-like symptoms and later discovered a large bullseye rash on her shoulder. Despite these classic warning signs, doctors repeatedly told her Lyme disease was impossible because she had been bitten in Arkansas. Multiple tests came back negative and she was given numerous misdiagnoses and medications instead of answers.

Amy shares how her health continued to decline while she saw 27 doctors before finally receiving a proper diagnosis from a Lyme-literate practitioner. She also explains how this experience led her to start the Arkansas Lyme Foundation to support patients in a state where Lyme disease is still widely denied. Her story reveals the serious gaps in Lyme testing, the consequences of misdiagnosis, and the power of patient advocacy.

Key Takeaways:

0:00 Introduction
2:15 Amy Rose’s Lyme infection and early symptoms in 2008
6:40 The bullseye rash and why Lyme was still missed
10:30 Five negative tests through Labcorp and misdiagnosis
16:50 Neurological Lyme and being misdiagnosed with Alzheimer’s
22:10 Losing the ability to drive due to brain inflammation
26:30 Finding a Lyme-literate doctor after seeing 27 physicians
32:45 Starting the Arkansas Lyme Foundation
38:20 Why Arkansas still denies Lyme disease exists
44:15 Reaching remission and focusing on cellular health and mold detox

Resources Mentioned:

Arkansas Lyme Foundation - https://www.arkansaslyme.org/
Labcorp - https://www.labcorp.com/

Medical Disclaimer: This content is for educational purposes only and is not intended to diagnose, treat, cure, or replace professional medical advice. Always consult your physician or qualified healthcare provider regarding any medical condition or treatment decisions.

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WORK WITH DR. KARLFELDT:

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