Episode 446: MS Advocacy and the National MS Society's Public Policy Conference with Steffany Stern

Episode 446: MS Advocacy and the National MS Society's Public Policy Conference with Steffany Stern

175 MS activists are heading to Washington, D.C. next week for the National MS Society's Public Policy Conference. Their mission: to bring the concerns of the MS community directly to lawmakers on Capitol Hill.

When it comes to the legislative support for healthcare and medical research, it's no secret that these are unusual times. Joining me to brief us on the National MS Society's ongoing advocacy efforts and give us a sneak peek at the specific legislative issues we'll be taking to Capitol Hill is the National MS Society's Vice President of Advocacy, Steffany Stern.

We'll also share updated results from an important study that show the risk of developing MS if a close relative is living with the disease is significantly higher than researchers originally thought.

And we'll give you all the details of a Phase 1 clinical trial that's focused on a novel approach to CAR-T cell therapy for MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Preparing for the MS Society's Public Policy Conference :22

I'm asking for your support: 1:37

An update to a 2015 study shows close relatives of people living with MS are 100 times more likely than the general population to develop MS 2:15

A novel approach to CAR-T cell therapy for MS is recruiting for a Phase 1 clinical trial 4:26

Steffany Stern, the Vice President of Research at the National MS Society, shares a major advocacy win and previews next week's Public Policy Conference in Washington, D.C. 7:27

Share this episode 33:04

Next week 33:25

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Support Jon at WALK MS
https://realtalkms.com/walkms

JOIN: Become an MS Activist
https://nationalmssociety.org/advocacy

STUDY: A Prospective Study of Individuals at Risk of Multiple Sclerosis Informs the Design of Primary Prevention Studies
https://onlinelibrary.wiley.com/doi/10.1002/acn3.70340

GEMS Study Recruitment
https:/nationalmssociety.org/news-and-magazine/news/ms-study-alert-gems

RealTalk MS Ep. 439: Preventing MS with Dr. Bruce Bebo
https://realtalkms.com/439

PARTICIPATE: A Study to Assess the Safety and Clinical of Azer-cel in Participants with B-cell Mediated Autoimmune Disorders
https://clinicaltrials.gov/study/NCT06680037/#contacts-and-locations

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RealTalk MS Episode 446
Guests: Steffany Stern

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