Inside a hospital stay with a chronic illness (my worst one yet)

Inside a hospital stay with a chronic illness (my worst one yet)

This week on Calling in Sick, buckle up… because a LOT happened. After insurance delayed my IVIG (again), a big ‘ol flare hit. I ended up hospitalized, and experienced what became the worst hospital stay I've EVER had. And I've had a lot of hospital stays. I'm walking you through the whole thing: the ER, the inpatient stay, the moment a doctor stood outside my room and said what he said (our biggest fear), the department head who told me he was going to cure me, and why I ultimately said YES to getting discharged, even though I probably should have stayed. We're getting into: ⭐ How an insurance denial on IVIG set the whole spiral in motion, and what I do when a flare hits ⚠️ The ER experience (surprisingly good at first) and exactly when and why it fell apart 💊 What medical gaslighting actually looks like in real time… and how I caught it happening to me 😤 Medical misogyny hiding in plain sight and why my husband's presence changed how I was treated 📋 What I wish I had done differently, and the concrete steps I'm taking now (including filing a report) If you've ever been dismissed, doubted, or talked over in a medical setting this one's for you. You're not crazy. You're not seeking you know what. You're sick, you’re in pain, and you deserve care without bias. xx, Alex 💙 💬 Comment: Have you ever been dismissed or gaslit by a medical team? What did you do? TIMESTAMP: Intro: 00:00:00 Welcome back to Calling in Sick! 00:03:36 Alex's Picks of the Week (Tower28 SOS Spray & Lip Treatment) The Hospital Stay from Hell: 00:06:05 Why I ended up in the hospital & the ER experience 00:11:03 Getting admitted and when everything changed 00:16:56 The moment that broke me (and what the doctor said in the hallway) 00:26:16 The department head visit promised he would CURE me!? 00:44:30 Why this is so harmful: the chronic illness literacy gap 00:46:00 The biggest 3 problems from this hospital stay 00:52:50 What I wish I had done differently + tips for your next stay Conclusion: 00:55:30 One Brain Cell Show: The Secret Lives of Mormon Wives 00:58:00 THANK YOU for the 500 DMs of stories and support <3 00:59:33 Thank you for listening! ------------------------------------------------------------------------------------ Stay connected and follow us on socials for more! • Instagram - https://www.instagram.com/callinginsickpod/ • TikTok - https://www.tiktok.com/@callinginsickpod • Facebook - https://www.facebook.com/profile.php?id=61558234607568 • Substack - https://substack.com/@callinginsickpod? ------------------------------------------------------------------------------------ Powered by: Just Media House -- https://www.justmediahouse.com/ Produced by: Alexandra Wildeson — https://www.instagram.com/alexandrawildeson/ ------------------------------------------------------------------------------------ Alex’s Picks of the Week: These were the two things that gave me any semblance of comfort during the hospital stay from hell… highly recommend adding both to your hospital bag! ✨ Tower28 SOS Spray — https://go.shopmy.us/p-38066811 ✨ Tower28 SOS LipSoftie Lip Treatment — https://go.shopmy.us/p-48434391 ------------------------------------------------------------------------------------ Thank you to our sponsors this week: Sequencing: Sequencing is the premier platform for genetic testing and analysis that includes the world's largest collection of DNA reports. For more details, visit https://www.Sequencing.com — and don’t forget to use code “CIS20” for 20% off at checkout! ------------------------------------------------------------------------------------ #MedicalGaslighting #ChronicIllness #SpoonieLife #InvisibleIllness #AutoimmuneDisease #ChronicPain #HospitalStay #PatientAdvocacy #IVIG #Vasculitis #Lupus #CRPS #Endometriosis #PolyarteritisNodosa #MCTD #ChronicIllnessAwareness #SpoonieCommunity #HealthJourney #ChronicIllnessBlogger #CallingInSickPodcast #AlexWildeson Learn more about your ad choices. Visit megaphone.fm/adchoices

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Episoder(126)

Is This Bad Advice for Managing Chronic Illness? (ft. Kati Morton)

Is This Bad Advice for Managing Chronic Illness? (ft. Kati Morton)

This Wednesday on Calling in Sick, Kati Morton, LMFT is back for the a new segment… “Is this Bad Advice?!” We are taking the most common mental health advice given to people with chronic illness and ...

12 Aug 36min

The Cost of  Perfectionism, People Pleasing & Craving Control on Chronic Illness (ft. Kati Morton, LMFT)

The Cost of Perfectionism, People Pleasing & Craving Control on Chronic Illness (ft. Kati Morton, LMFT)

This week on Calling in Sick, I'm sitting down with Kati Morton, LMFT — licensed marriage and family therapist, author of Why Do I Keep Doing This, Traumatized, and Are U Ok?, and one of the most trus...

10 Aug 1h 11min

Peptides 101: What They Are, Recent FDA Votes & Popular Chronic Illness Peptides ft. Max Swiergol

Peptides 101: What They Are, Recent FDA Votes & Popular Chronic Illness Peptides ft. Max Swiergol

This week on Calling in Sick, Max Swiergol is back for a deep dive on one of the most viral and most misunderstood topics in the chronic illness and wellness space right now… PEPTIDES!!! You've see...

5 Aug 35min

How to research like a doctor, understanding clincal trials and CAR-T optimism (ft. Max Swiergol)

How to research like a doctor, understanding clincal trials and CAR-T optimism (ft. Max Swiergol)

This week on Calling in Sick, I'm sitting down with Max Swiergol, osteopathic medical student, research enthusiast, and one of the most accessible voices translating cutting-edge science for the chron...

3 Aug 1h 4min

How to Support Your Nervous System for Chronically Illness (ft. Nitika Chopra)

How to Support Your Nervous System for Chronically Illness (ft. Nitika Chopra)

This week on Calling in Sick, Nitika Chopra is back to discuss the ONE thing that a lot of people in the chronic illness community have been quietly waiting for someone to say out loud. We're getti...

29 Jul 46min

The Chronic Illness Identity Trap (ft. Nitika Chopra)

The Chronic Illness Identity Trap (ft. Nitika Chopra)

This week on Calling in Sick, I'm sitting down with Nitika Chopra, founder of Chronicon, chronic illness advocate, and someone who has been navigating life with a body that doesn't cooperate since she...

27 Jul 58min

Pregnancy Q&A: Cyclospora Anxiety, Birth & Feeding Plans, Registry Decisions & more!

Pregnancy Q&A: Cyclospora Anxiety, Birth & Feeding Plans, Registry Decisions & more!

This week on Calling in Sick, I’m answering all your pregnancy Q&A! We're diving into: 🥬 My Cyclospora anxiety — what foods I’m avoiding and why I’m mad at the government (lol) 🩺 How to actually...

22 Jul 33min

Chronic Illness Q&A: Staying Positive, Infusion Prep, New Endometriosis Trials & More

Chronic Illness Q&A: Staying Positive, Infusion Prep, New Endometriosis Trials & More

This week on Calling in Sick, I’m answering all your chronic illness Q&A! We're diving into: ⚖️ The NUMBER ONE rule I live my life by and navigate chronic illness with💉 My top tips for preparing for...

20 Jul 35min

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