Day 2 - James Barlow - Use of complementary and alternative medicine (CAM) among people living with Sjögren's

Day 2 - James Barlow - Use of complementary and alternative medicine (CAM) among people living with Sjögren's

An astonishing 84% of people living with Sjogren's reported using some form of Complementary and Alternative Medicine (CAM) in the past year. But what exactly are they using, why are they using it, and is it safe?In this research-focused presentation, pharmacist and Senior Lecturer James Barlow shares the results of a comprehensive survey on CAM usage among Sjogren's patients. He defines what "integrative" medicine truly means, breaks down the most popular CAM practices (from supplements like turmeric and Omega-3s to practices like acupuncture and yoga), and discusses the evidence—or lack thereof—for their effectiveness in managing Sjogren's symptoms.Watch this session to get an evidence-based perspective on CAM and learn why open communication with your healthcare team is crucial when integrating these approaches into your care plan.SESSION IN A GLANCE01:31 Understanding 'Integrative Medicine'03:55 Who Uses CAM? Patterns of Use07:04 The I-CAM Research Project and Survey Results09:54 Most Common CAM Practitioners and Treatments14:57 Deep Dive: Vitamins and Minerals16:59 Food Supplements and Omega Oils21:41 The Complexity of Herbal Medicines24:06 Turmeric: Food or Medicine?25:17 Reported Adverse Effects of CAM vs. Conventional Medicine26:45 Traditional Chinese Medicine (TCM) and Acupuncture29:21 Key Takeaways and the Importance of CommunicationABOUT JAMES BARLOWJames Barlow is a Senior Lecturer in the Department of Chemistry at RCSI University of Medicine and Health Sciences in Dublin, Ireland. He trained as a pharmacist and has a particular interest in natural products, including evidence-based complementary medicines. With 20 years of experience teaching students in courses on Pharmacognosy, CAM, and chemistry, he is an advocate of the evidence-based use of CAM approaches in an integrative context.CONNECT WITH JAMES BARLOWWebsite → https://people.rcsi.com/jambarlowSjögren's Ireland → https://sjogrensireland.ieSjögren's Synergie → https://sjogrens-synergie.euResearch Paper → https://link.springer.com/article/10.1007/s00296-025-05802-wABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

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Episoder(25)

Day 3 - Kara Wada, MD - Beyond Medication: The 3-Visit Immune Reset

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Day 3 - Kara Wada, MD & Janet Steins - Roundtable: "The Clinical Trial Journey: Patient Perspectives & Insights"

Day 3 - Kara Wada, MD & Janet Steins - Roundtable: "The Clinical Trial Journey: Patient Perspectives & Insights"

What is it really like to be in a clinical trial for a new Sjogren's medication? What are the tests like? What's the time commitment? And is it worth it?In this unique and candid roundtable discussion...

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Day 3 - Lilly Stairs - The Power of Patient Communities & Network Advocacy

Day 3 - Lilly Stairs - The Power of Patient Communities & Network Advocacy

What does ambition look like when you're living with a chronic condition? How do you build a vibrant life and career when your body requires you to work smarter, not harder?In this candid and inspirin...

19 Jul 202525min

Day 3 - Delia Chiaramonte, MD - Caring for Someone You Love Without Losing Yourself

Day 3 - Delia Chiaramonte, MD - Caring for Someone You Love Without Losing Yourself

Caregivers often struggle to remain empathetic and compassionate without becoming depleted and overwhelmed, leading to guilt, resentment, and burnout. But it doesn't have to be this way.In this deeply...

19 Jul 202526min

Day 3 - Kristina Kelly, BCPA - Hack Your Healthcare_ Top 10 Tips for Tough Talks with Docs

Day 3 - Kristina Kelly, BCPA - Hack Your Healthcare_ Top 10 Tips for Tough Talks with Docs

Do you ever leave a doctor's appointment feeling rushed, unheard, or more confused than when you arrived? The emotional toll of dismissal and confusing medical jargon can leave Sjogren's patients feel...

19 Jul 202523min

Day 3 - Bexi Lobo, PhD - Networking and Advocacy - Making a Difference Together

Day 3 - Bexi Lobo, PhD - Networking and Advocacy - Making a Difference Together

Do you ever leave a doctor's appointment feeling rushed, unheard, or more confused than when you arrived? The emotional toll of dismissal and confusing medical jargon can leave Sjogren's patients feel...

19 Jul 202523min

Day 3 - Jillian Rigert, DMD, MD, ACC, TIPC- The Importance of Compassionate, Trauma-Informed Care To Cultivate Healing

Day 3 - Jillian Rigert, DMD, MD, ACC, TIPC- The Importance of Compassionate, Trauma-Informed Care To Cultivate Healing

Autoimmune conditions and their symptoms are often exacerbated by trauma and stress. While we are often taught to internalize our emotions and stress, this can lead to self-criticism that only fuels t...

19 Jul 202525min

Day 3 - Bianca Campbell - Intergenerational Trauma AND Resilience for Stress Reduction

Day 3 - Bianca Campbell - Intergenerational Trauma AND Resilience for Stress Reduction

What if the patient you see as "difficult" is actually traumatized? For many living with Sjogren's, years of medical dismissal, normal lab results despite debilitating symptoms, and being told "it's a...

19 Jul 202524min

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