Walk softly and carry a big stick

where I'm thinking I'm going to have to do different strategy in really start getting a public officials to understand that if they are thinking that stonewalling me and waiting for me to die will make the problem go away. that it isn't just horrifying it isn't true. absolutely things will go terribly for them if I die. at some point somebody's going to cudgel them with my story. And truthfully if they allow that, it's as well they should.

But it's a million times better to work with me, to use my experience and my ability to see all of the different sides and communicate them to course correct a huge loss of talent and tax base to unnecessary disability via long covid and all kinds of other long viral ME just being diagnosed in a timely way with correct instructions to stay inside one's energy envelope can be dramatic. And that's just aiming at the financial impact politically not the human rights atrocity of the kind of abdication I'm experiencing

anyway, I'm hanging in. Just barely. by my fingernails

Sick times republish of op-ed March 20th 2025

https://l.gourl.es/l/56898fa8ccf060b8bf79b817ad9fabd986f4a62f?u=11010884

gfm

https://gofund.me/6d981312

My email if you think that you're somebody who could do the kind of textual help I need iammadelinepod@gmail.com

The CTV email campaignEmail campaign Template https://docs.google.com/document/d/1VD2zqOKxcQp7SUP06mY8slZlH1sXkKHKVPV0IfLo-uI/edit?usp=sharing

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Episoder(165)

Apocalypse Nightmare

a month away from running out of GoFundMe. at least that's the amount of money I for sure know gets me to mid-november. I don't know if I can stretch it further especially as I'm still bouncing back f...

19 Okt 18min

Roadblocks and bright spots

where I talk about the push me pull you of me meaning emotional balance versus Health balance and struggling of course with financial deficits that make both of those hard. and then roadblocking all o...

14 Okt 19min

Melty Downy

The perils of attempting to mask how sick I am and how scared I am about it but at the same time needing to be able to compartmentalize there's a bright light though. we (myself plus two wonderful vol...

30 Sep 22min

Healing Crisis

it just realized I didn't really explain in this episode what I mean by healing crisis. for me it's been when a treatment makes some symptoms worse but ultimately improves everything. things get a lit...

23 Sep 16min

MASKING

where I talk about masking pain and fear. what masking is how it works. how it can trigger nightmares as it has done this evening. and I talk about how the death of my mobility scooter a couple of wee...

18 Sep 41min

Grace

I was already thinking about Grace but then rewatching the documentary #YOU ARE HERE: A COME FROM AWAY STORY about the planes that landed in gander Newfoundland on September 11th. Being from Newfoundl...

12 Sep 37min

I'M BACK

I'm back . my August hiatus from advocacy (because I was starting to melt down out of the pressure of a difficulty coming from so many angles) is over. although it wasn't a hiatus from a whole bunch o...

2 Sep 16min

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min