housekeeping, deep clean part one

housekeeping, deep clean part one

Because of the amazing efforts of my friend and the GoFundMe she set up to have my apartment deep cleaned We started today! So I thought I would document that for the donators to that particular gfm. But I also thought regular listeners and donators to my GoFundMe for the treatments that keep me alive would like to hear about it. Especially how it is such a critical support. And also some of the internalized ableism and disability bias I have going on around housekeeping. some part of me still thinks that I can do it which isn't true. And empirical evidence shows it isn't true. And outrageous pain and exhaustion shows that it isn't true. But still some part of me believes that.


anyway the child like delight I feel at having just this beginning part of getting my apartment clean made the Also delighted. They said it made them feel really appreciated Especially that I made up the clean floor song lol

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Episoder(165)

Apocalypse Nightmare

Apocalypse Nightmare

a month away from running out of GoFundMe. at least that's the amount of money I for sure know gets me to mid-november. I don't know if I can stretch it further especially as I'm still bouncing back f...

19 Okt 18min

Roadblocks and bright spots

Roadblocks and bright spots

where I talk about the push me pull you of me meaning emotional balance versus Health balance and struggling of course with financial deficits that make both of those hard. and then roadblocking all o...

14 Okt 19min

Melty Downy

Melty Downy

The perils of attempting to mask how sick I am and how scared I am about it but at the same time needing to be able to compartmentalize there's a bright light though. we (myself plus two wonderful vol...

30 Sep 22min

Healing Crisis

Healing Crisis

it just realized I didn't really explain in this episode what I mean by healing crisis. for me it's been when a treatment makes some symptoms worse but ultimately improves everything. things get a lit...

23 Sep 16min

MASKING

MASKING

where I talk about masking pain and fear. what masking is how it works. how it can trigger nightmares as it has done this evening. and I talk about how the death of my mobility scooter a couple of wee...

18 Sep 41min

Grace

Grace

I was already thinking about Grace but then rewatching the documentary #YOU ARE HERE: A COME FROM AWAY STORY about the planes that landed in gander Newfoundland on September 11th. Being from Newfoundl...

12 Sep 37min

I'M BACK

I'M BACK

I'm back . my August hiatus from advocacy (because I was starting to melt down out of the pressure of a difficulty coming from so many angles) is over. although it wasn't a hiatus from a whole bunch o...

2 Sep 16min

medical instruction REST

medical instruction REST

it won't let me post all of what I posted in the GoFundMe update so here's that link if you want to read the rest ( https://gofund.me/6d981312 )I'm hanging in best I can. But I'm definitely burnt out ...

7 Aug 6min

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