The intersection of autism and epilepsy

In this episode Catherine Asta is joined by writer, birthkeeper and filmmaker Lucy Baena to explore the often-overlooked intersection of autism and epilepsy. Drawing on her lived experience as an autistic and epileptic woman, Lucy shares a deeply personal account of growing up with epilepsy, receiving a late autism diagnosis at 38, and how understanding both has transformed the way she understands herself.

Together they discuss the hidden realities of living with epilepsy beyond seizures, including stigma, disclosure, trauma and the emotional impact of navigating a world that often misunderstands invisible disabilities. Lucy reflects on the challenges of being dismissed by professionals, the overlap between epilepsy and autistic experiences such as shutdowns, meltdowns and burnout, and why listening to lived experience is essential to providing person-centred care.

The conversation also explores practical ways families, friends and professionals can offer meaningful support and Lucy reflects on how self-compassion has become life-changing, why disability does not diminish the possibility of a joyful and meaningful life.

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