#243 PhenoTips: Navigating Barriers in LGBTQIA+ Genetic Care

#243 PhenoTips: Navigating Barriers in LGBTQIA+ Genetic Care

We are closing out Pride Month with a recent installment of the PhenoTips Speaker Series. DNA Today’s host Kira Dineen is also one of the hosts of the PhenoTips Speaker Series. This live webinar focuses on relevant genetics topics by featuring discussions with thought leaders and experts in genomic medicine. This episode is the 24th installment of the PhenoTips’ Speaker Series, “Navigating Barriers in LGBTQIA+ Genetic Care”.

A 2018 Harvard study found that nearly 1/6th of LGBTQIA+ adults have experienced discrimination in a healthcare setting, while 1/5th have avoided seeking medical care out of fear of discrimination. Efforts have been made in recent years to improve the cultural competency of genetic professionals, however, barriers to compassionate care for LGBTQIA+ individuals persist. In an environment of changing healthcare legislation and increased hostility towards the LBGTQIA+ community, creating a safe space for patients is more challenging than ever.

Panelists:

Dr. Jehannine Austin (they/them) Executive Director of BC Mental Health, Professor in Psychiatry & Medical Genetics at the University of British Columbia

Andy Cantor, CGC (she/they/he) Senior Genetic Counselor & Certified Trainer on Trans and Non-Binary Competency at Labcorp

Josephine Giblin, CGC (she/her) Genetic Counsellor at NHS Bristol

Katie Gallagher, CGC (she/her) Assistant Program Director at Sarah Lawrence College

In this episode’s panel discussion moderated by Kira Dineen, our panel of international experts and advocates discusses:

  • Protecting patients during times of unprecedented legislation
  • Creating psychologically safe and inclusive environments
  • Supporting access to equitable care
  • Representation in family history collection
  • Resources and best practices to support LBGTQIA+ colleagues and patients

Last year we also celebrated pride month with PhenoTips. In Episode #189 we interviewed two experts from PhenoTips, Orion Buske and Erica Peacock about building inclusive pedigrees. We also released last year’s PhenoTips Speaker Series Pride installment on Episode #190, which focuses on providing gender affirming care, specifically in the genetic counseling space. As a queer member of the LGBTQIA+ community, our host Kira Dineen is excited to share all these episodes, including this week’s!

These webinars are sponsored by PhenoTips. During these live events we interview leaders in the field of genetics and moderate questions live from the audience. Check out upcoming installments by heading over to PhenoTips.com where you can also stream all the webinars from the last three years.

Stay tuned for the next new episode of DNA Today on July 7th where we continue our History of Genetic Counseling Series, this time joined by seasoned genetic counselor Ginny Corson! New episodes are released every Friday. In the meantime, you can binge over 240 other episodes on Apple Podcasts, Spotify, streaming on the website, or any other podcast player by searching, “DNA Today”. Episodes since 2021 are also recorded with video which you can watch on our YouTube channel.

DNA Today is hosted and produced by Kira Dineen. Our social media lead is Corinne Merlino. Our video lead is Amanda Andreoli. Our Outreach Intern is Sanya Tinaikar. Our Social Media Intern is Kajal Patel. And our Graphic Designer Ashlyn Enokian.

See what else we are up to on Twitter, Instagram, Facebook, YouTube and our website, DNAToday.com. Questions/inquiries can be sent to info@DNAtoday.com.

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Episoder(412)

#411 Mock Cancer Genetic Counseling Session: Colon Cancer and Lynch Syndrome

#411 Mock Cancer Genetic Counseling Session: Colon Cancer and Lynch Syndrome

What happens during genetic counseling after someone develops colon cancer at a young age and their tumor testing raises concern for Lynch syndrome? This is the eighth installment in our Mock Genetic ...

11 Sep 30min

#410 Gypsy Rose Blanchard’s 1q21.1 Microdeletion: What Does It Explain?

#410 Gypsy Rose Blanchard’s 1q21.1 Microdeletion: What Does It Explain?

This episode drop from the PRETEND podcast series “The Gypsy Rose Obsession” features Kira Dineen explaining what Gypsy Rose Blanchard’s genetic test result may, and may not, mean. Gypsy Rose Blanchar...

4 Sep 43min

#409 How DNA Testing Exposed the Dark History of American Adoption

#409 How DNA Testing Exposed the Dark History of American Adoption

What happens when stigma, secrecy, and institutional power separate a mother from her child, and prevent an adoptee from accessing his own identity and medical history for decades? This week, we are s...

28 Aug 43min

#408 Low ALP, Fractures, and Early Tooth Loss Point to Hypophosphatasia

#408 Low ALP, Fractures, and Early Tooth Loss Point to Hypophosphatasia

Hypophosphatasia (HPP) can present very differently from one person to the next, from life-threatening complications in infancy to fractures, chronic pain, muscle weakness, or early tooth loss later i...

21 Aug 37min

#407 NFL and Kansas City Chiefs Star Art Still on the Missed Signs of Hereditary Amyloidosis

#407 NFL and Kansas City Chiefs Star Art Still on the Missed Signs of Hereditary Amyloidosis

What happens when the symptoms of a genetic condition look like the lasting effects of a professional football career? Former NFL defensive end and Kansas City Chiefs star Art Still spent decades attr...

14 Aug 39min

#406 Mock Teratogen Genetic Counseling Session: Ozempic, Zoloft, Xanax, and Metformin

#406 Mock Teratogen Genetic Counseling Session: Ozempic, Zoloft, Xanax, and Metformin

This is our seventh installment in our Mock Genetic Counseling Session Series! In this episode, genetic counselor and teratogen information specialist Sharon Voyer Lavigne and student Edith Atwerebour...

7 Aug 30min

#405 Why Insurance Denies Genetic Testing, and How to Navigate Coverage

#405 Why Insurance Denies Genetic Testing, and How to Navigate Coverage

Genetic testing can change the course of a patient’s care, but accessing the right test is not always straightforward. Behind the scenes, insurance coverage decisions, documentation requirements, prio...

31 Jul 34min

#404 Male Breast Cancer with X-Men Actor and Former Pro Wrestler Tyler Mane

#404 Male Breast Cancer with X-Men Actor and Former Pro Wrestler Tyler Mane

What happens when someone known for strength, stature, and intimidating roles faces a diagnosis most people do not associate with men?   Tyler Mane is known for playing Sabretooth in X-Men and Deadpoo...

24 Jul 21min

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